Our Life With Children & Diabetes!

Give Your Fingers A Break "A Diabetes Tidbit"

2012-01-24T11:08:00.001-08:00

Nikki has been testing her blood sugars on her fingers since she was 2 years old. So as you can imagine her fingers get calluses. We wanted to have her give her fingers a break and time to heal so her brother Patrick who uses his arm to test shows her how it is done.

Please feel free to share our Diabetes Tidbits with your community.

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How To Keep Your Meter Warm With Cold Weather Sports

2012-01-12T13:10:00.000-08:00

If you are like us and are out in the cold weather doing winter sports you might wonder how to keep your meter warm so that it works when you go to test. Watch our "Diabetes Tidbit" on what we do to ensure that the meter works.

Please Share Our Diabetes Tidbits with your communities

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When The Pump Crashes

2012-01-04T16:12:00.000-08:00

It's always my biggest fear that we will be traveling and something will happen to one of our childrens insulin pumps. I try to prepare for that happening but even with all of my preparations I missed something oh so important! Check it out, and feel free to share!

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I Am Horrible About Field Trips

2011-12-26T07:55:00.000-08:00

As a mom of 3 children with type 1 diabetes, through the years I have volunteered to go on numerous field trips for our children, here is why I am horrible about field trips now.

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Party Party With Diabetes "A Diabetes Tidbit"

2011-12-17T08:17:00.000-08:00

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Air Travel With Diabetes "A Diabetes Tidbit"

2011-12-09T09:54:00.000-08:00

Traveling with diabetes brings up a lot of questions here is what I found out and a couple of websites that will help.

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Figure It Out! A "Diabetes Tidbit"

2011-11-30T11:21:00.000-08:00

Sometimes you just have to figure out what works for you. Check out what's happening with Nikki.

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Don't Be Afraid Of The Apps

2011-11-23T11:29:00.000-08:00

If you are like me all this new technology can be overwhelming. I resisted for a long time getting a new phone and here is what I have found out!

If you like our Diabetes Tidbits Please feel free to share with your communities.

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Happy Holidays Friends, Julie & Dawn

Teens & Diabetes "Not Testing" A Diabetes Tidbit

2011-11-15T12:16:00.000-08:00

Sometimes you have to do what you gotta do. Check out how we are working with our teen and testing.

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Know Your Sports "A Diabetes Tidbit"

2011-11-07T10:18:00.000-08:00

Know two sports are the same today's diabetes tidbit discusses how to make a good transition to a new sport
for more diabetes tidbits please join us at
http://www.pumpwearinc.com/index.php?page_id=487
Please share our videos with your diabetes community

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Real Time & The Magical Numbers

2011-10-25T08:32:00.001-07:00

When you ask your child what their blood sugar is do you get some wonderful numbers that maybe don't agree with what their monitors and pumps are telling you? We found a way to help give you Real Time and real numbers! Please feel free to share our diabetes tidbits with your diabetes communities.
http://www.pumpwearinc.com/index.php?page_id=487

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Dare I Mention Mood Swings, A Diabetes Tidbit

2011-10-11T08:18:00.000-07:00

Are you dealing with crazy mood swings then check out this weeks diabetes tidbit to see how we got our mood swings in line.

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I Bet You Didn't Know

2011-09-30T05:22:00.000-07:00

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Ready Set Go! A Diabetes Tidbit!

2011-09-20T08:22:00.000-07:00

We have believed from the beginning that it's important to make diabetes a positive experience, here is one fun way of teaching your child how to test, that we have used since Nikki was little and we still do this with the boys.

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Nikki Tells You What She Likes and Your Teen Will Like As A Fast Acting Sugar & Why

2011-09-06T08:34:00.000-07:00

Nikki knows she needs to have a fast acting sugar with her at all times and she has found one she really likes and thinks your teens will too.

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feel free to share our diabetes tidbits with your communities.

Class Room Parties With Diabetes "A Diabetes Tidbit"

2011-08-29T10:43:00.000-07:00

Are you a parent worried about all those classroom parties when parents bring in cup cakes and snacks that you are not aware of? Than check http://www.blogger.com/img/blank.gifouhttp://www.blogger.com/img/blank.gift this diabetes tidbit on what we found to make those parties a positive experience for your child with diabetes.

Please feel free to share our "Diabetes Tidbits" within your communities.

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Today I Tell You Exactly What Is In Our 504 Plan!

2011-08-23T07:09:00.001-07:00

There have been so many questions about what should be in a 504 plan that I thought I would share with you exactly what is in our plan. These are just mere suggestions on what has worked well for us. We have used this plan from Kindergarten up through High School and have had to make just minor tweaks! Hope you find it helpful. Feel free to share this vlog with your diabetes communities.

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How To Plan A 504 (A Diabetes Tidbit)

2011-08-16T11:52:00.000-07:00

I've been getting lots of questions on how to actually go about getting a 504 plan in place with your school. Here are a couple suggestions to get you going! A Diabetes Tidbit.

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Teens Helping Others Learn To Change Their Site

2011-08-12T16:15:00.000-07:00

Nikki loves to demonstrate, today she is showing us how long it takes her to change her site, enjoy!

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Should I Have A 504 Plan?

2011-08-08T12:23:00.000-07:00

This question comes up all the time. Here is how I feel about it.

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Helping Teachers Be Prepared For Children With Diabetes

2011-08-01T15:06:00.000-07:00

With the new school year approaching we thought you would like to view this popular video on how to help teachers be prepared.

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Teaching Our Teens Responsibility

2011-07-26T10:16:00.000-07:00

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De-Stress Yourself!

2011-07-18T06:02:00.000-07:00

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Some Times It Isn't Just About The Numbers A Diabetes Tidbit

2011-07-12T04:13:00.000-07:00

It was so nice to have our doctor praise Nikki for a job well done without concentrating on what the actual numbers were!

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Write It Down & Break It Up! " A Travel Diabetes Tidbit!

2011-07-05T17:02:00.000-07:00

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Having Everything You Need At Your Finger Tips! A Travel Diabetes Tidbit!

2011-06-28T05:57:00.000-07:00

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A Fast Acting Sugar That You Might Not Have Thought Of!

2011-06-21T09:12:00.000-07:00

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Making Siblings Feel Special!

2011-06-14T12:01:00.000-07:00

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Beating The High Cost Of Food At Amusement Parks!

2011-06-07T07:35:00.000-07:00

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Keep Your Site On During Water Fun!

2011-05-31T05:18:00.000-07:00

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Take The "Hurt" Away From Site & Sensor Changes!

2011-05-24T09:36:00.001-07:00

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Diabetes Mgmt Is Non Negotible

2011-05-17T08:52:00.000-07:00

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Can You Use A "Free Family Weekend?

2011-05-10T06:46:00.000-07:00

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I Can't Remember "A Diabetes Tidbit"

2011-05-03T12:32:00.000-07:00

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How Do I Afford Diabetes Camp? A Diabetes Tidbit!

2011-04-26T13:21:00.000-07:00

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Give The Kid A Break Part II

2011-04-19T10:31:00.000-07:00

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Room To Room Diabetes

2011-04-08T13:06:00.000-07:00

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Driving Long Distance With Diabetes

2011-03-29T08:31:00.000-07:00

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2011-03-15T06:19:00.000-07:00

Sleep Overs & Diabetes

Julie Mom to Adam 22,Patrick 19 & Nikki Tyler 13, All have Type 1 Diabetes

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Making Changing A Fun & Positive Experience

2011-03-10T08:19:00.000-08:00

Teenagers Helping Each Other

2010-12-14T13:36:00.000-08:00

Julie Mom to Adam 22, Patrick 18, & Nikki Tyler 13

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The Download Tells All

2010-12-09T06:42:00.001-08:00

When Nikki was little I felt like we had so much more control on her blood sugars, now that she has turned 13 we have found that where we thought we had control was really a nice fantasy in our mind, because she has all the control now.

The last couple of doctor visits have been telling and the one we just came from was a real eye opener to us on how we really don't have the control at all.

I will be doing a vlog with Nikki on the outcome of that meeting and how we are handling this newest development. I just wanted to reach out to all of you that are feeling the same way, as much as we give them the tools and remind them to do all the right things the ultimate decision on what they do is up to them.

We are working to instill the importance of proper care and have our children "Own" their diabetes. Stay tune for an interesting vlog

Julie Mom to Adam 22, Patrick 18 and Nikki Tyler 13

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We Need Your Help!

2010-11-23T12:46:00.001-08:00

We need your help! We entered this contest a couple of months ago called "Love A Local Business" and we came in 2nd we have the opportunity to try it again and we would love to win this opportunity of a grant that could mean more families go to camp, more products can be developed.

It's really easy to help us you simply go to "Love A Local Business" and hit I am a fan of a business, type in Pump Wear Inc. and Cohoes NY. Than you simply vote.

You can only vote once. We really appreciate your help!

Julie Mom to Adam 22, Patrick 18 and Nikki Tyler Officially 13 years old!

We hope you all have a wonderful Thanksgiving and holiday season!

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Sometimes They Surprise You!

2010-11-19T17:45:00.000-08:00

Today is Nikki Tyler's 13th birthday! Yes 13 years of our little girl, she has grown so much over the years and we love her so much. Over the years as siblings grow they constantly take pleasure in picking on each other and my children are no different. As a mom you sometimes wonder how can they continue to annoy each other and how you are going to stay sane during it all.

Well I am here to tell you that "sometimes they surprise you". A tradition we have is whenever someone's birthday comes around we all go out to eat to that person's favorite restaurant. This year Adam our oldest had to work so last week he called his sister to see if she wanted to go to a movie, he took her out to a movie, lunch and got her a gift card. Since Patrick is away at school we knew that he would not be available for dinner either. Yesterday a card came addressed to Nikki it was from Patrick telling her that he was sorry he wasn't there to give her a hug and kiss for her birthday and that he loved her, enclosed was a book store gift card for her favorite book store.

Nikki was so happy first that she spent a day with her big brother and second that Patrick who she takes great pleasure in annoying constantly took the time to actually write her a card, of which she said she is going to save as proof that he loves her!

So just when you think you have seen it all they surprise you, and this kind of surprise I will take any day of the week.

Happy Birthday Nikki Tyler who is now officially 13 years old.

Julie Mom to Adam 22, Patrick 18 and Nikki Tyler 13

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You Got To Love Them

2010-11-16T10:11:00.000-08:00

Patrick is away at school and I have to tell you , "You Got To Love Them". I am loving that since he has been away he has been texting me, calling me and skyping me. With today's technology it has made having him away from home so much easier.

The other day he wanted to know why I never answer his skype calls! It's so funny because he must call every time I am away from the desk! He also wanted to know why i sometimes don't answer him on facebook? Well sometimes I have facebook up but i am not at my desk or I am working on another screen.

I just want to hug him because I love that he wants to see or talk with me, you just can't ask for more than that. So to my Patrick I say I will watch for you on facebook and listen for your skype calls because you are a vip call I don't want to miss, hugs!

Julie mom to Adam 22, Patrick 18 and Nikki Tyler 13 (almost)

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6 things I Wish They Told Us

2010-11-09T05:29:00.000-08:00

6 Things I wish they had told me when we were first diagnosed with type 1 diabetes,

I wish in the early days that they had told us that it was ok to be overwhelmed and that we were not alone, that we had been directed to a support group right away

I wish that we were told that we would be facing up hill battles that would test our strengthen as a family and our faith.

I wish they had told us that we were working with a disease that does not allow us to control it

I wish they had told us that our family would find a bond stronger than anything we could ever dream of

I wish they had told us that we would make friends that would become an important part of our lives, that these friends would be there morning noon and night, the common bond we all share would make us all stronger.

I wish they had told us that we as a family would be able to allow our children to grow and do what ever they wish to do with their life, that we would find the way to help and support our children so that they can accomplish all that they want to and that we would have this inter circle of friends that would always be there to assist us. We will Survive

November is National Diabetes Awareness Month with November 14th being world Diabetes Day, spread the word its time for a cure.

Julie Mom to Adam 22, Patrick 18 and Nikki Tyler almost 13 All have Type 1 Diabetes

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Give The Gift Of Memories

2010-11-04T05:26:00.000-07:00

For years we talked about being able to offer insulin pump cases with pictures that people send us so that we can make their insulin pump case truly unique and original. This past year we were finally able to provide this to everyone. We are finding that the "Picture That" insulin pump cases are becoming very popular with kids and adults sending in their favorite pictures to proudly display on their cases.

I had one done myself with my three children on it and wear it all the time but i use it for my cell phone! I have had people ask me where I got it simply because they too would like to have some of their memories put on a case as well.

With the up coming holiday season I plan on giving these as gifts! What better way to bring in the holiday than by cherishing memories.

Another really neat idea with the gift of memories is that you can have more than one case done and slip them all on a belt telling a story! Many many unique ways to savor the memories. We hope that you will enjoy our Picture That cases as much as we are.

Julie, mom to Adam 22, Patrick 18 and Nikki Tyler almost (13)

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Give The Gift Of Awareness

2010-11-01T09:58:00.001-07:00

November is National Diabetes Awareness month, with November 14th being World Diabetes Day. Lets take this month to give the gift of awareness to those that we know. I think it is timely to send friends and families the signs of diabetes. There are so many families that are touched by diabetes we hope that you will use this month to bring awareness to all that you know within your communities.

Warning Signs for Type 1 Diabetes

November is National Diabetes Awareness Month

Knowing the warning signs for type 1 diabetes (juvenile diabetes) could save a life.
Warning signs of type 1 diabetes (these may occur suddenly):

* Extreme thirst
* Frequent urination
* Sudden vision changes
* Sugar in urine
* Fruity, sweet, or wine-like odor on breath

* Increased appetite
* Sudden weight loss
* Drowsiness, lethargy
* Heavy, labored breathing
* Stupor, unconsciousne

If you or someone you love exhibits one or more of these symptoms, call a doctor immediately.

Education about the symptoms of type 1 diabetes is critical because type 1 can easily be mistaken for more common illnesses, such as the flu. JDRF has literature which lists the symptoms and treatments of type 1 diabetes and hypoglycemia (low blood sugar)--available for download here.

Each year, approximately 30,000 Americans are diagnosed with type 1 diabetes; over 15,000 are children. That's 35 children each and every day, approximately one child per hour.

Misdiagnosis can have tragic consequences, as the story of the Futrell family of Michigan sadly confirms. Knowing the warning signs of type 1 diabetes can save a life. Please share what you've learned with everyone--family, friends, teachers, doctors. Until a cure is found, the more who know, the more lives will be saved.

Please help JDRF raise awareness about the warning signs of type 1 diabetes--a chronic, debilitating autoimmune disease that is most often diagnosed before the age of 30. As with many diseases, early diagnosis goes a long way toward preventing serious health problems, and even death.

Julie, mom to Adam 22, Patrick 18 and Nikki Tyler (almost 13)

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Where Do You Wear Your Site

2010-10-20T09:39:00.001-07:00

We recently had a problem with Nikki’s site, she noticed that it was hard and hurt to the touch. She typically likes to wear her site on her thigh and she rotates legs and spots on the thigh. When she was younger she would put the site on her upper butt, now that she is older and changing her own site she likes to put it where she can reach it. She will not try the tummy, why I don’t know other than she thinks it hurts there.
Her leg became infected at the site location , she had this type of problem once before and we had to hot pack take meds and it finally went down and cleared up. I automatically started the hot packs got her into a doctor and she is now on the meds. Needless to say no site changes on that leg for a while so we are back where to put her site if she doesn’t want her tummy, the butt is ok but not really where she wants it, so she has it on the one leg and we are looking for more areas that she might be willing to try. Would love to hear where you are wearing your site and how often you rotate the spots.

Julie , Mom to Adam 22, Patrick 18 and Nikki Tyler 12
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Recommendations Need To Be In By 10/31/2010

2010-10-18T13:16:00.000-07:00

When we first entered into the world of diabetes I remember feeling like I was alone and know one really understood what we as a family were going through. We felt like we were in an insulated world where we couldn't leave our daughter because we were afraid to leave her and people were afraid to watch her, to missing my sons baseball games because i was treating a low blood sugar. If you have ever felt this way or know a family that just needs a hug be sure to recommend them for the 2011 "Caring and Sharing Weekend.

The beautiful part about this weekend is that is is totally free to the 19 families chosen and it is for the entire family. Think of it 1 weekend of carefree fun with your family and others. (transportation not included). The 2011 forms are on line for the "Caring & Sharing" Weekend and must be postmarked by 10/31/2010.

Julie, Mom to Adam 22, Patrick 18, Nikki Tyler 12

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No Plan At All!

2010-10-12T10:24:00.000-07:00

I just love when there’s no plan and everything comes together. This past weekend Patrick was home from school. It was wonderful to spend the day with him, Nikki and his friend Sean. That night Patrick’s friend Erica came over and they all stayed up watching movies and fell asleep on the living room floor.
Sunday mornings we do breakfast I text ed Adam to make sure he was awake and could meet us, woke the gang on the floor up. Mark was not golfing so he was able to join us and my mother in law Lorraine was also coming. Adam’s friend Matt called to see if he could come too!
We arrived at Denny’s around 8:30 a.m. a party of 9 and it was so wonderful to have everyone together, our children and their friends who are like ours as well. Around the table 4 children tested their blood sugar (Erica also has diabetes) . It was the norm and between the jokes, laughter and love I have to say it was a perfect morning!
It’s moments like this that are just the best! Oh and totally unplanned!

Julie, Mom to Adam 22, Patrick 18, Nikki Tyler 12 all have Type 1 diabetes

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Diabetes Mom Approved

2010-10-05T16:06:00.000-07:00

This past summer we had a great experience with The Great Escape in Lake George New York. They were friendly and so accommodating to the needs of our daughter and her diabetes. Having this park recognize the needs of our daughter made her summer one of the best! Since we had season passes we loved going here because we knew that Nikki would be able to really enjoy the park and when diabetes issues came knocking on our door this park stepped up to the plate to help and ensure that Nikki was taken care of and had a good time.

I posted recently on my facebook how "Diabetes Friendly" this park was and also mentioned a place that was not so "Diabetes Friendly". There were so many responses from people also telling about places and restaurants that they have found very helpful to them that it got me thinking. Wouldn't it be great to have a place where we can share this information, other mom's and caregivers sharing information on where the place to be is. After all if there are places out there that give great service, have carbs on menus and other things wouldn't you want to know about it?

So we have created a "Diabetes Mom Approved" Fan Page on Facebook. We have formed a committee of mom's that will be coming up with a mission statement and guidelines so that we can share and spread the word about places that are "Diabetes Friendly".

Be sure to check it out and list what you have found we will be reviewing all posts as we develop this page to bring you the places that are "Diabetes Friendly".

Join us at "Diabetes Mom Approved"

Julie, Mom to Adam 22, Patrick 18 and Nikki Tyler 12 All have Type 1 Diabetes

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Love A Local Business Please Vote For Us!

2010-09-21T13:52:00.000-07:00

We have entered a contest that could allow us to develop even more products and ways to make living with diabetes fun.

To win we have to be the one with the most votes, and we will have the possibility of winning a $5000.00 grant to use to further develop, create and enhance products. We also will be able to add to the funding we help raise towards sending more families to camp each year.

So if you could take 5 seconds of your time press the icon to vote . We thank you from the bottom of our heart!

Thank you for giving us the opportunity to serve you.

Julie Mom to Adam 22, Patrick 18 & Nikki Tyler

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Why Free Facebook Friday!

2010-09-14T14:47:00.000-07:00

This is just one of the many "Free Facebook Friday" winners that we have had since starting our Free Facebook Friday a couple of weeks ago. I think this picture pretty much says why we are continuing with our Free Facebook Friday's. They are fun and we are making so many friends that can truly use these free products. That's why for the time being we will continue to do a Free Facebook Friday. We hope to get other companies to join us, so if you know a company that might like to participate tell them to contact us because we would love to get a good amount of products to hand out every Friday.

There's nothing like spreading our friendships by helping out where we can. So be sure to share Free Facebook Friday with your walls and let others in the community know that they too can win on Friday's!

It's easy to win on our Free Facebook Friday simply go to facebook and join our fan page

Then watch the video on Friday and write "I Want it under the video"

Julie, mom to Adam 21, Patrick 18 and Nikki Tyler 12 All have Type 1 Diabetes

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How Long Does It Take You!

2010-09-07T14:11:00.000-07:00

Julie Mom to Adam 21, Patrick 18 and Nikki 12

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Helping Teachers Help Our Children With Diabetes

2010-09-02T17:24:00.000-07:00

Julie, Mom to Adam 21, Patrick 18, and Nikki 12 all have Type 1 Diabetes

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The Day Has Come

2010-08-26T11:10:00.001-07:00

August 22nd I woke up to a down pour of rain that promised to continue throughout the day. It was ok because it just went with my mood. The day had arrived to drop Patrick off at school. I thought I would at least hold it together till it was time to leave him, but we never even made it out of our yard before the tears began to fall. Yet Patrick was comforting and I got to ride the whole way out with just him and I, with Mark and Nikki following in the filled van.

The rain was awful and I kept thinking how we are going to unload all of this stuff in this down pour! Have no fear when we arrived to unload his things about 20 students met us at the door and in 1 trip we were able to bring all of his things up to his room.

We quickly got the bed made and things unloaded, than we made the fateful trip to the store for all of the things we forgot or just didn’t think to bring. We stopped for lunch and than brought him back to his dorm.

We met his room mate Chris who was really nice Chris had been there a week because he does soccer, he proceeded to introduce Patrick to more new friends. The college actually had a schedule pretty full of activities for the entire incoming freshman starting with that night.

We finally said our goodbyes (I think he was finally happy to be left alone). Our drive home was filled with more rain, detours that took us out of our way and Nikki getting sick in the back seat. At first I thought she had ketones but none were present and she felt much better afterwards. We got home about 8:00 pm and later that night I received my first Skype call from Patrick telling us he went to the get together and he really thinks he likes it there.

Got to love technology away from home but still connected!

Julie, Mom to Adam 21, Patrick 18 & Nikki 12 All have Type 1 diabets

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The Camping Experience

2010-08-20T05:35:00.000-07:00

Diabetes Camps, Oh the anticipation of going, we had to get there early because she wanted a top bunk, we got there and there were no top bunks so she seemed to accept this as a trooper and proceeded to stake her claim to the bunk of her choice. Of course she chose the one that had the draws in it because a girl has to have a place for her things!

Although Nikki has gone to the Circle of Life Camp for years and has always loved it this year was different, first it was at a new location 3 hours away from where we live. So for me this was a little stressful because I am not use to having her that far away from me, also this was her first year with the big girls (the 13 year olds) and up, and many of the kids that normally went to camp weren’t going to be there. She was also going for a longer period of time.

The new camp is huge with a lot more land and room than before with so many possibilities for many events and programs down the road. Nikki loved that this camp had a built in pool (my girl does not like the sand, dirt or lake). We left her in the care of her New Counselors.

I started writing my bunk notes to her right away, and when we picked her up she declared that she had the most bunk notes ever (well i didn’t plan it that way but i think i ordered more credits than i should have and than had to use them up) so she got bunk notes from everyone and really enjoyed them.

The week in our house was quiet and I truly realized how much I enjoy having her by my side, especially now that our Patrick will be going away to school.

Patrick and I drove out to pick her up and the smile on her face and the friends that she was attached to made me realize that no matter what the cost or the distance having a child attend a diabetes camp is worth the experience and friendships that they will make. These friendships will last a life time. We weren’t even in the door and Nikki got on facebook and her new friends were already friending her. Her other friend was texting her all the way home. So although distance may separate them kindred hearts bring them together and facebook and texting keep them connected. They are already planning a meet up!

The cost of a diabetes camp is considerably more than a week long camp for a child that does not have diabetes, so I always like to mention that although the camps are costly they are worth every penny and there are ways to help ensure that your child has this opportunity. Many organizations such as the elks club, and Rotary Clubs just to mention a few often will donate to help a child go to diabetes camp. Also many of the camps have a process where you can apply for scholarships to the camp. Another option is to do your own fund raiser to help with the cost of camp. I hope that your child has the opportunity to visit one of the many wonderful diabetes camps available.

Till Next Time: Julie mom of Adam 21, Patrick 18 and Nikki 12 All with Type 1

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Texting & Driving

2010-08-10T12:07:00.000-07:00

As parents we all now have something in common when our children start driving, for parents with children who have diabetes it is the worry of a low blood sugar but what about all the “texting” that’s going on? Throw in the distraction of texting and we are faced with one more obstacle to over come. I am all for putting the phone away when driving unless needed, but if your kids are like mine they can virtually text without even looking.

I recently did an interview with Dr. Charles Sophy: Dr. Charles Sophy has dedicated his life to the physical and mental well-being of children and families nationwide. As a psychiatrist specializing in Adult, Child & Adolescent Psychiatry and Family Practice, he currently serves as the Medical Director for the Los Angeles County Department of Children and Family Services (DCFS), the nation’s largest Child Welfare System. He was first asked to provide his medical opinion on national television for PBS in a show called “A Place of Our Own”. After a successful first television appearance, he was invited to provide his expertise on Celebrity Rehab with Dr. Drew Pinsky, Sober House with Dr. Drew, Today Show, Larry King Live, The Rachael Ray Show, Fox News Channel, Good Morning America, CNN Anderson Cooper, Inside Edition, CBS Early Show and Fox News Channel. He is best known for his work with Dr. Drew on Celebrity Rehab and is now a regularly featured expert. For more information,

Watch our video :

visit: http://www.lg.com/us/mobile-phones/text-education/about-text-ed.jsp

Feel Free to share our blog with your friends.

Julie, mom of Adam 21, Patrick 18 and Nikki 12 All suffer from Type 1 Diabetes

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Many Changes

2010-07-30T16:33:00.001-07:00

Did you ever notice that when things happen they usually happen all at once. We have so many changes happening here that it really is amazing. First in front of our house they are redoing the park and tennis courts to a newer and improved regulation size, redoing our road and sidewalks, we literally cannot go out side our front yard due to the ongoing construction. They are working really hard and the park and road should be ready for September.

To get to our home you have to come on to the island it’s called Van Schaick Island and the bridge to get here has been being redone also, so we have to come into the island from the other side. The new bridge is looking really good and should be ready this September.

Then in the mist of all this we had Patrick graduate from High School and in 3 weeks (so soon) we will be packing him up to go to college. Adam has ventured out on his own (for the 2nd time) with a group of friends leaving yet another room empty. Come September it will be just Mark, Nikki and I and a new bridge a new park and a new road.

After a summer so full of noise, activity and fun it will be interesting adjusting to the quiet of the street and the house.

Julie, Mom to Adam 21, Patrick 18 and Nikki 12 All with Type 1 Diabetes

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Dex 4 To The Rescue

2010-07-22T08:22:00.001-07:00

I just had to take a moment and blog about a recent "low blood" sugar that we had when we were in Myrtle Beach. Nikki was getting ready to go on a ride, while in line she felt low and tested her blood sugar she was 60. She proceeded to pull out her container of "Dex 4 bits" and started to eat them, all of her friends wanted to try them and guess what they all loved them. Nikki really felt great about sharing this treat with her friends while also bringing up her low blood sugar.

Some times I forget that it's hard to stop having fun to treat a low, she really wanted to go on the ride with everyone else yet we had to treat this low. There have been many times where I have had to pull her out of line or take her out of a game to treat the low, being able to treat her low and continue on with her friends really made a difference.

Remember they are kids first and the more we can do to make their lives normal the happier we all our. Having fast acting sugars that taste good and work quickly are essential in keeping our kids happy and healthy.

Just had to share this, here is the link to Dex 4 "bits". I am sure that everyone has their favorite for treating lows feel free to share!

Julie
Mom to Adam (21), Patrick (18), Nikki (12)

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Adults? Not

2010-07-08T07:59:00.001-07:00

Adults Right? Not!

Heres something Important for everyone to know if you have a child reaching the age of 18 and adult hood. Once they turn 18 they are considered and an adult and by law you have to have this young adults permission to get information about their health care and school records.

What this means is that as your son or daughter ventures off to college or the work world you will not be able to help them order medical supplies, talk with their doctors, get prescriptions filled or assist them in a medical emergency unless you have written permission giving you access to do so. You will not be able to get information about their grades and school life unless they allow you that access. You will of course still be responsible for this young adult, have to paid all of their bills and meet all of their needs. You just don’t have the ability to know what is going on behind the scenes unless they sign off. Yes parents you get to pay for college you just don’t get to know if they are actually going to class or passing.

Here’s how to stay in the loop! Have your child sign the forms allowing you access to school records. What if they don’t want to sign? I don’t want to pay, in our house it is as simple as that. Yes you have the right to privacy but when I am paying the bill out of respect you will give me access to know what the grades are.

Health care is another matter entirely you need to have written permission to talk with doctors, I have my son’s give a letter to their doctors offices and I also have a letter on hand so that in case of an emergency I can prove that it’s ok for them to talk with me.

I have been blessed that my sons have freely given us access to school and medical, however I have seen horror stories of young adults that have not signed for parents to access this information and parents not knowing their child has not gone to class for an entire semester yet they were responsible for the bill. I have also seen parents try to assist their young adults with insurance information only to be told that they don’t have the right to that information.

It’s Hipaa at it’s finest, and although I agree with this law, I don’t think it should be in effect till our children our out of school.

The Health Insurance Portability and Accountability Act (HIPAA) of 1996 (P.L.104-191) [HIPAA] was enacted by the U.S. Congress in 1996. It was originally sponsored by Sen. Edward Kennedy (D-Mass.) and Sen. Nancy Kassebaum (R-Kan.). ...
en.wikipedia.org/wiki/HIPAA

Julie, mom to Adam (21), Patrick (18) & Nikki Tyler (12.5) All Have Type 1 Diabetes

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Happy Birthday To My Best Friend Dawn

2010-07-02T11:32:00.000-07:00

Happy Birthday To My Best Friend!

This weekend celebrates one of my dearest and best friend’s birthday. Dawn will celebrate her 50th birthday on July 4th. Who would have thought that over 22 years ago after meeting at an aerobic class that we would still be going strong! I even introduced Dawn to her husband at my son’s birthday party and they will celebrate 10 years of marriage this year. We have been together through all of my children's diabetes issues, and Dawn's Breast Cancer and through all of this have built a company and stayed friends, growing stronger as we go. Our birthday’s are exactly 1 month apart (mine was June 4th). (yes I am 1 month older) I can not describe how wonderful a friend Dawn is, she’s the person you know will always be there for you, she’s the one you know you can call at 2:00 a.m.just because. She if fierce in her protection of me and my family and will sacrifice her last dime to help a friend. Dawn is the friend that everyone wishes they had and I am so happy to call mine.

August 1st is friendship day and I thought this would be the perfect time to let our best friends know what they mean to us. I found some wonderful quotes that I think truly fit Dawn when I think of her. As I wish Dawn a very happy birthday I hope all of you also have the opportunity to reach out and send one of these quotes or a hug to your best friends! Happy Birthday Dawn, Thanks for making me a better person and for being there through everything! Love ya, these quotes say it all hugs!

Quotes That Remind Me of My Best Friend Dawn:

A friend is the one who comes in when the whole world has gone out. ~Grace Pulpi

The best kind of friend is the one you could sit on a porch with, never saying a word, and walk away feeling like that was the best conversation you've had. ~Author Unknown

Lots of people want to ride with you in the limo, but what you want is someone who will take the bus with you when the limo breaks down. ~Oprah Winfrey

Friends are relatives you make for yourself. ~Eustache Deschamps

A friend knows the song in my heart and sings it to me when my memory fails. ~Donna Roberts

A true friend is one who thinks you are a good egg even if you are half-cracked. ~Author Unknown

Friends are kisses blown to us by angels. ~Author Unknown

A true friend reaches for your hand and touches your heart. ~Attributed to Heather Pryor

Happy Birthday To My Best Friend Dawn Love Julie

Julie Mom to Adam 21, Patrick 18 and Nikki 12 all have Type 1 Diabetes

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My Facebook Friends

2010-06-29T11:17:00.001-07:00

Facebook Friends!

Something that I have been thankful to have found are the numerous friends on Facebook. I have found so many old friends along with making new ones.

What is really nice is that I never thought that I would consider Facebook a support system but I find that is exactly what it is. Whatever the time, place or occasion you can expect to find friends willing to encourage you and support you. There’s always someone available for a chat, always someone willing to give you answers to your questions.

So if you are out there and think that you are alone than come on over to Facebook and become a friend!

Thank you all my Facebook friends both Old and New I love connecting with you all!

Julie , Mom to Adam 21, Patrick 18 & Nikki Tyler 12 All Have Type Type 1

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My Passion To Be Heard

2010-06-18T10:24:00.001-07:00

I am often asked to speak at various events relating to diabetes and mainly our experiences as a family of three children with type 1 diabetes.

I will honestly tell you that I don’t have the answers only what we have done to try to help motivate our children, keep them safe and be their advocates. I can honestly tell you that everything we try does not work and we simply move on and try the next thing. Since all of our children are at various ages and stages in life ages 21, 18 and 12 with the youngest being diagnosed at 2 ½ years old, we have I think been running through just about every thing imaginable pertaining to diabetes. I like to share these experiences because we truly are not alone on this adventure.

I recently spoke at an event where a women came up to me afterwards and told me that hearing me speak about harping on one of my sons about his diabetes and what he wasn’t doing that I forgot to look at what he had been doing and when I finally realized what I sounded like to him and corrected my behavior and started to look at the good he was doing I started to see a turn around in him. I think of myself as a pretty positive person and here I was forgetting to concentrate on the positive. Even one small positive thing that someone is doing is so worth praising and can really make a difference. Listening to this mom talk about her own son’s issues and how she felt that all she did was tell him what he wasn’t doing that she forgot about telling him how proud she was about the things he was doing. By the end of the night we were both in tears and knowing that we somehow were able to connect in such a basic way just refueled me and my passion to be heard.

Helping one person to know that they are not alone really does make a difference so if you have an opportunity to be heard don’t be afraid to share your experiences.

Julie mom to Adam (21), Patrick (18) & Nikki Tyler 12 all Type 1 Diabetes

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I Don't Feel Guilty

2010-06-10T09:26:00.001-07:00

I Don’t Feel Guilty!

About 6 years ago we were in Disney and my son Adam had an episode from standing in the heat. He was with a group of other children who also happen to have diabetes and by the time I got to him he was dehydrated and basically done for the day. He was in their medical office for the a while and at the hotel with my husband the rest of the night recovering from being dehydrated.

This all occurred because he was standing in lines, not drinking etc. It happened fast and his blood sugar just dropped and it was difficult to keep it up. Disney was actually wonderful and they offered us a pass to get him on the rides without waiting in the lines. He was to sick to use the passes that day but we went back actually a couple days later and had a wonderful day because we were able to use this pass to move us through the lines with out all that standing in the hot sun.

At first I felt guilty for using the pass and moving ahead of the lines (people will look at you like how come you get to go in without waiting) people don’t really understand why it’s not good for us to have them stand in line in the heat like that and how it really can effect someone with diabetes blood sugar we were lucky with the episode with Adam he was able to recover within a day. As I thought about this benefit (if there is ever a benefit) to go in to an amusement park and let them know of our medical necessity one little thing like being able to get through a ride without having to wait in line was the one thing that could actually be a positive for a child with diabetes I say go for it!

Julie Mom to Adam (21), Patrick (18) & Nikki Tyler (12) all have Type 1 Diabetes

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Dear Nick

2010-06-04T10:13:00.000-07:00

This is a letter that I just sent to Nick Jonas to invite him to participate in the "Wall of Change". Wouldn't it be great to see Nick's wall of change! Don't know if the letter will reach him or if it will get read but I just had to give it a try!

So Nick if you are out there please join us on the "Wall of Change". We would also like to invite everyone with diabetes to participate it's easy, fun and it will help fund a cure for diabetes!

Dear Nick Jonas,

Thank you for all that you are doing to bring awareness to Type 1 diabetes, and the efforts you are making to help raise funds to find a cure for diabetes. Having you as a face for diabetes has been so rewarding to our children because it lets them know that they truly can do anything. Along with being a face for diabetes you have called attention to the fact that diabetes can affect anyone and that it is time for the cure.

As a mom of three children who suffer from this illness finding a cure for diabetes has become my life time goal. That’s why we have established the “Wall of Change”. The
Wall of Change is simply a wall on the internet that has the many faces of children and adults suffering from diabetes. It’s easy to participate you simply gather your spare change and form the number of years that you have had diabetes than take a picture, you send the picture to us and the change to JDRF. The “Wall of Change” allows us to put a face on diabetes and help fund the cure 1 penny at a time.

We would like to invite you to participate in the “Wall of Change” it’s easy and fun and we know that having you as a face for diabetes would encourage others to help fund the cure 1 penny at a time.

You can view the “Wall of Change”

Hope Everyone has a great weekend and I will be sure to let you know if we hear from Nick! If anyone out there knows him please feel free to pass this on to him!

Julie mom to Adam (21), Patrick (18), Nikki (12) All Type 1 Diabetes

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Because I Like Lists!

2010-05-25T08:10:00.000-07:00

I've been getting a lot of calls about people getting ready for camping and I know through the years with our boys camping and now Nikki I find that once again I rely on my lists to make sure that I have everything I need for them. This list I have used for years and you can add or subtract from it what you need, but it has really helped me make sure I have everything for our campers!.

Here I Go Again With My Lists!

Cabin
Bunk sheets and pillowcases
Pillows
Blankets
Laundry bag

Recreation
Swimsuit and swim cap
Swim goggles
Beach towel
Ear plugs
Nose plugs
Beach ball

Personal
Items
Toothpaste, toothbrush and holder
Soap dish and soap
Disposable towelettes
Towels and washcloths
Lip balm
Sunscreen
Special blanket/toy

Diabetes Items

Site changes (lots)
Reservoirs
Injector
Test strips
Spare test kit
Ketone strips
IV Prep
Batteries for Pump
Batteries for test kit
Insulin
Other meds
Frio Insulin Pump Wallet
Splash Pack for Insulin Pump
Spare Insulin Pump Case

Emergency or First Aid Items
First Aid kit
mirror
Police whistle
Insect repellent
Instant cold compress

Camping Equipment
Backpack
Sleeping bag
Flashlight/batteries/bulbs
Canteen with cover and cup
Plastic or enamelware dishes
Knife, fork and spoon set
Compass
Binoculars
Camera
Sunglasses

Clothing
Underwear
Athletic socks
T-shirts
Shorts
Jeans and pants
Sweatshirt
Shower shoes
tennis shoes
Hiking boots
Rain suit or poncho

Hope that this list helps get you ready for camping.

Julie Mom to Adam (21) Patrick (18) Nikki (12) All Type 1 Diabetes

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How Many Balls In The Air Do You Have?

2010-05-21T13:20:00.001-07:00

How many balls do you have in the air? Do you ever feel like you have so many things going on that you can’t imagine getting everything done? It’s really kind of funny but the more balls I have in the air I really feel like the more things I do get done!

You know the old saying, if you want something done than ask a busy person! That is so true. This past week has been a crazy, crazy, week, I was tied up all day at a career fair (which was totally awesome) than we had softball games, dance practice for Nikki’s recital, Junior National Honor Society, Chamber meetings and trying to get house, yard ready for upcoming graduation party. In the mist of all of this I have been running around trying to make sure everyone is testing and blousing, (remember we had those not so pretty episodes of not testing and blousing when they should). So I have been trying to stay on top of all 3 children. One child is really doing well, one is starting to see the light and making improvements, and one child is telling me lots of stories, (like “I didn’t eat at all today” therefore I didn’t need to test and bolus) and if I believe that one I am sure there will be another tale for me. With diabetes it’s just being consistent and continually trying to stay on top of what is going on. I don’t have a secret formula of what works and what doesn’t but I do know that if “I” am not watching what is going on it seems like everyone gets lazy.

So in the mist of all our craziness I make list after list of things that I need to check and do and I find that more often than not I am pretty good about getting through my list, and I am great at follow up! So if you are looking to get all those things you want done, than start making “lists”. I have to write down even the smallest things like (remember to text Nikki for blood sugar) because I just won’t remember if I don’t have it written down, (now that is sad).

Have A Great Weekend!

Julie mom to Adam (21), Patrick (18) and Nikki (12)

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Sometime's We "React"

2010-05-18T08:45:00.001-07:00

I have to tell you this story because I know that we are not alone in our quest to ensure that our children are protected and that they know how to handle different situations. As parents of children with diabetes I think we are always on the guard to stand up for our children which is a good thing but sometimes we “react”!

Nikki was at a softball game the other day and she forgot to put on her “pump band” which would keep the pump up and out of the way . So she left the pump in her hook “pump pak” which dangles. It was clipped on to her shorts. When she went up to bat the Empire said something to her, my husband witnessed her disconnecting her pump and putting it off to the side than batting.

Of course you are reacting right now exactly the way my husband reacted! How dare he tell her to remove her pump, doesn’t he know that this pump needs to stay on her! So my husband goes storming over to the Empire ready to give him a piece of his mind about asking her to remove the pump. The two had a little discussion and come to find out the Empire did not tell her to remove the pump, he simply stated that she needed to tuck it in so that it was not dangling, and Nikki decided it was easier to remove the pump!

So something’s are not always what they appear to be, this instant just reminds me to make sure we know all the facts before we “React”.

Julie, mom to Adam (21), Patrick (18), Nikki (12) All have type 1 diabetes.

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One of those days!

2010-05-14T16:37:00.001-07:00

My day started pretty good, I got out the door on time went to pick up my daughters friend to take to school, I waited in the car while Nikki went in to get her, 20 minutes later they came out, all was good I had my kindle to keep me company.

Drop them off at school, run to post office, go to work, son number 1 comes in to go over some paper work he needed help with, no sooner sit down and son # 2 calls has a rash that won’t stop itching, he is highly allergic to a lot of things and had already been to the doctors once but the meds weren’t working. Can’t get him into a doctor again so we are on way to emergency room when I finally get a hold of doctor for new meds. Go to Pharmacy to get the meds, I could see this was going to take way to long so I leave my son there with payment (nice that he can drive) and head out to my 11:30 meeting. Meeting turned out to be a bust not at all what we were thinking it would be, so I turn around to run out to get a shipment of new products rushing to make sure I can get the shipment and get back to pick up Nikki. The shipment turns out to have the wrong size case and has to go back (what are you going to do things happen) so I go and pick up my daughter from school.

School gets out no Nikki, then I remember she has practice for her awards ceremony no problem I have my kindle to keep me company. She comes out 1 hour later and wants to go to her bowling league which she at this point has already missed more than half of, but it’s the last one and they are giving out awards so I pull into the bowling alley she runs in. Nikki comes back 10 minutes later with 2 awards and a bowling towel and lets me know that I owe her 1.00 because she didn’t bowl but I have to pay if she misses it. She’s happy and I am ready to head home and son number 2’s skin doctor calls and wants to see him, he is on his way back to the office can I meet him there. I drop off Nikki and meet Patrick at doctor’s office, long story short guess what Patrick has? Poison IVY poor kid! So we finally get him taken care of, I stop yes again at the pharmacy to drop off the new prescription and run home because now its 5:30 and Nikki has a softball game. Ask me what I got done today and I think I will scream!

So I calmly turned Nikki over to my husband and told them to have a great game and I will see them in a little while. Finally Peace & Quiet! It was just one of those days!

Julie Mom to Adam (21) Patrick (18) & Nikki 12

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The Trick List!

2010-05-04T13:06:00.001-07:00

After a very shocking Dr. Appointment I have decided to let those of you who have children in the 12 and up age group in on some of the most common “Tricks” that our kids are playing with their lives.

1. When you ask them to test “Be sure they are really testing” and not just pulling out the test meter and giving you a number. Or if you are not in the same room as them they may just give you the number you want to hear.
2. If you look at their pump and you don’t see a blood sugar listed (they just bloused) chances are good that they never tested and simply bloused based on the food they were going to eat and how they felt.
3. Don’t buy the excuse I used the test kit up stairs, in my car etc. If you don’t have a kit to verify a number don’t believe that they tested.
4. When you ask them what their blood sugar was at lunch don’t take it for fact that they did even test at lunch.

As our kids get older they also get wiser to what we want to hear and what they don’t want to bother with, they will come up with a lot of ways to hide the fact that they just aren’t testing and blousing they way they should.

We had quite an eye opener when we down loaded one pump and saw that the only time this child had tested was at super (when they were physically with us). For breakfast there was nothing entered in the pump for a breakfast bolus or blood sugar! How can this be since I literally get this child the same thing every morning for breakfast ask them to test and they “always” give me a number, I even remind them by saying did you bolus and the answer is always “Yes”. So how can you have a day on your pump where the only blood sugar and bolus are at super when you are physically sitting in front of me?

This type of Dr. Visit of course was a huge wake up call to what we are being told and what is actually being done. So I rounded up child number 2 and looked at his pump and he had boluses in it but only 1 actual blood sugar throughout the day? What does this mean I asked, well this child has the wisdom to see and feel what the actual blood sugar is therefore no need to test! How on earth can you give yourself insulin and “Not even know what your blood sugar is?”

So based on this enlightenment I have printed out calendars laid them on my desk and every night I am “PHYSICALLY” reading all the information off of the pump to verify the testing and blousing. Weekend activities and privileges will be given based on the outcome of these readings.

Just when you thought you were 2 steps ahead you take 4 steps back. Playing with their lives is not an option so we will be persistent in making sure the “Tricks” are over.

Remember Kid’s will be Kid’s but we have to be smarter!

Julie , Mom to Adam (21) , Patrick (18) and Nikki Tyler (12) All Type 1

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Gross But It Works

2010-04-30T14:01:00.000-07:00

Gross But It Works!

Do you watch your child test? If you do, what do they do with the excess blood spurting from their finger? My one son tends to just rub it into his skin, but my other son and my daughter just lick it off!

I know it sounds gross and I really don’t know if there is a problem doing this, I use to put a wipe in the case for them to just open and clean it with, apparently that is to much work. I then tried just a kleenex you know you can just easily grab it and wipe the excess blood off on that. That worked till the time it needed to be replaced.

Apparently just licking the excess drop of blood off is the easiest and fastest way. My daughter explained to me that she does it because that way she can make sure she doesn’t get the blood on anything else. (she has gotten blood on her clothes before) and this way she doesn’t have to worry about the blood going anywhere.

It’s gross right? I thought so but apparently my kids aren’t the only ones that do this. I was at camp this past weekend and observed several children doing this.

So my next project is going to be to come up with a swatch that attaches to the test kit that has wipes on it so that as you use a wipe you can remove and use the next one. This should last till they use the last sheet, than they will no doubt revert to the lick it off method.

Forever trying to find the perfect solution to a not so perfect disease.

Julie Mom to Adam (21) Patrick (18) & Nikki Tyler (12)

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The Final Straw

2010-04-27T10:36:00.001-07:00

How many times should you have to request a young adult clean up their room? I am not talking about just putting away clothes but picking up the computer they took apart because they could make it run better. Or emptying out the huge green garbage bag that they filled when they were cleaning out a car (yes a car)!

Both my husband and I are pretty easy going and would be perfectly happy if the room did not look like the city dump. When opening his door you have to step over clothes and sometimes I think he has more glasses in his room than in my cupboard. He has about 6 blankets thrown all over the place, bags of dirty clothes (what’s with the bags). Than he has clean clothes (he does do his own laundry) folded neatly sitting on dressers, floors and desks. There are cd’s, video’s and change everywhere (I do pick up the change and figure finders keepers).

The room never use to be this bad, but for the past month the junk yard has grown, we have asked nicely, with no reaction today was the final straw! I gathered everything that was on the floor and dragged it on to my nice “clean back porch” (he wasn’t home). I called him and said if you want any of the stuff out on the porch you better come home and clean it up other wise tomorrow I move it to the garbage can!

He pulled up about an hour ago and is cleaning! Good thing I love him!

Julie Mom to Adam (21) Patrick (18) & Nikki (12) All Type 1

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To Go, Or Not To Go!

2010-04-22T09:34:00.001-07:00

I remember a time when my daughter was too little to go to a diabetes camp. I waited for years till the time she would finally be able to attend. When she finally hit the age to go several things happened. First she didn’t want to go! Second I was afraid to let her go overnight after all she needed me! (even if the camp has doctors and nurses I somehow thought she wouldn’t survive without my presence ).

So the first year which I remember clearly because it was my husbands & my wedding anniversary and instead of shipping her off and going away we stayed local and I volunteered at the camp (you know just in case she needed me). We settled on a local 3 day camp to see how she did. I volunteered in the kitchen (those who know me, will recognized the dedication to my daughter because I hate to cook or even be in a kitchen).

The camping experience for her was so wonderful I couldn’t believe how easily she fit in and how good she felt about being around others just like her. Since I was working in the kitchen and they did a lot of things in the big room there I got to see first hand the interaction between little ones and older experienced kids. How they all encouraged each other and feed off of the smallest accomplishments. These kids became excited about simply testing an arm rather than a finger! Nikki and Patrick's First overnight camp is the “Circle Of Life Camp”. I mention this camp because I know first hand the quality of care and entertainment that my daughter and my son have received. It's funny that something like going to a diabetes camp can really shape your child and build them relationships that can last a lifetime. My son attended this camp (thankfully not on on the same days as Nikki , you know he was a teenager then and didn’t want to mix with the little campers (I guess they like their own space). My Patrick has made so many friends through this camp that even as he prepares to go away to college he still stays in contact with several of them. He has actually stayed in contact with so many of these kids that some days he has more friends with diabetes around him than not! The other cool thing is that now that the kids are getting older they are volunteering at these camps and giving back to the community that has helped them so much.

I guess what I am trying to say is that if you have the opportunity to let your child attend a camp and there are some great ones, such as the Sugar Free Gang, Circle Of Life, and The Barton Center another truly inspiring camp that’s worth letting your child attend. The Barton Center gave Nikki a group of friends to bond with and build a relationship with. I know that some of the camps are quite costly but be aware you can do fund raisers to send your child to camp and you can also contact your local groups such as Rotary & Elks Clubs (some of these local clubs are happy to help a child go to camp) and many camps also have a scholarship fund they can draw to.

It is worth every penny to have your child involved in a diabetes camp, they learn, they thrive and they grow! Oh and Nikki told me right after I finished volunteering at the Circle of Life Camp that it was ok if I didn’t volunteer again because she wanted to be on her own like the big girls! (whew, no more cooking for me)!

Camp Information

The Circle Of Life Camp

The Barton Center

DLife List of Diabetes Camps

Julie
Mom of Nikki Tyler (12), Patrick (18) & Adam (21) All Type 1

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When They Are Ready

2010-04-20T18:01:00.001-07:00

When Nikki was little she took dance for a while. She didn’t care for it until 3 years ago when she tried ballroom dancing (yes they actually teach ballroom dancing). She has loved it, and eagerly goes to dance class every Wednesday. We had tried, jazz, tap, and Irish Step (that’s a whole different story). All of the other classes fizzled out over months, but the ballroom dancing stuck.

When Nikki was 6 she started softball, my husband was the coach, because after all he always coached the boys and wanted to do the same for her. She was absolutely horrible! She was whiney, didn’t want to play, and didn’t like anything about the game. She was so bad and gave him such a hard time I eventually had to pull her and let him coach the team without her! How dedicated is he to be coaching a team for the season even though your own daughter won’t play. Well this season Nikki has asked to play softball again! Believe me I wanted to run in the other direction and tell her absolutely not! Of course, she wore me down and we signed her up. We have been at practice the last couple of weeks and to my surprise she is actually enjoying it. What a difference a couple years can make.

This year Nikki has a woman coach (no dad this time, I think he is silently thanking us for not asking him). The major message here is that this time she “Asked” to play, just like she asked to do ballroom dancing. Although we had tried these things in the past and they didn’t work, this time they are working I think because now she is ready! So if you feel like your child should be doing something like playing softball and they don’t want to or they give you a hard time about participating than it’s sometimes better to wait till they are ready.

Julie
Mom to Nikki Tyler (12), Patrick (18) & Adam (21) All Type 1

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Things That Excite Me

2010-04-16T09:01:00.000-07:00

You know you are a mom of a child with diabetes when little things like a good blood sugar first thing in the morning really excites’ you. There’s just something about waking up to a 101 bg that seems to set the pace for the rest of the day.

Simple things in our life with diabetes now have the ability to excite me, for example, don’t you just love it when you ask your darling to test and they say that was my last test strip? Don’t you feel great when you (super prepared mom) can pull out a box of test strips out no matter where you are? Do you get a rush when darling number 2 (son) says he forgot his test kit at home? You anticipating kids being kids, pull your trusted test kit from your purse, even though you don’t have diabetes? With three children with diabetes, someone is always forgetting something, but having three with diabetes there is usually someone who has what we need on them if that fails (usually mom has the back up for the back up). Recently my daughters poker broke and in a panic she automatically started complaining that she was not going to be able to test because there was no way she was just going to jab herself with the needle (can’t say I blame her there) , but out of know where I remembered that when we were at camp last year they gave out these disposal needles and being me I happen to throw a couple in my organizer bag that I keep in the car and sure enough they worked great! It was a quick poke Nikki was happy and I was happy I know it’s pathetic but it excites me when we are able to make it work!.

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I Wear Gray For .....

2010-04-13T17:16:00.000-07:00

I wear Gray for my daughter Nikki Tyler diagnosed at the age of 2 and half years old, still a baby. She should have been free to be just a toddler and to know a life that doesn’t consist of finger pricks and site changes. Nikki Tyler does not know life without diabetes. I hope that someday we can give that to her.

I wear Gray for my son Adam diagnosed 2 years after Nikki at the age of 14. Adam had his teen years interrupted by diabetes. Adam knew a life without diabetes, yet having lived with his sister knew what was to come. A major adjustment for any teenager.

I wear Gray for my son Patrick diagnosed 4 months after Adam at the age of 11. Patrick who after having his brother diagnosed with diabetes actually said “I wish I had Diabetes too”. Sadly that wish came true.

I wear Gray for my husband Diagnosed with Type 2 diabetes 2 years ago, my wonderful husband who has been so committed to finding a cure for diabetes now finds himself included among those that need the cure.

As you can see I am wearing a lot of Gray!

I wear Gray for the many friends and family that have been touched by diabetes because I feel what they feel that it truly is our time for a cure.

Wearing Gray brings me comfort that one day I will be able to say “We helped find a cure for diabetes”.

Now it’s your turn “Why do you wear Gray”

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Get Involved It's An Honor!

2010-04-09T06:15:00.001-07:00

Getting involved is the best medicine! Think you can’t make a difference? You are wrong, no matter how small the effort getting involved really does bring us 1 step closer to a cure.

As we are all connected to the world of diabetes I feel a sense of community and family among all of you. From the first diagnose of our daughter 10 years ago, yup it will be 10 years in June we have tried to do our part to help find the cure. We have walked in the walks, we have fund raised by having different benefit suppers and events. We have literally been involved in so many different things, just to mention a few, sidewalk art contest, radio-thons ,spaghetti dinners, candy bar sales and so much that sometimes my head spins.

Last year I think I became totally burned out! I remember feeling guilty because I just couldn’t pull everything together for an annual dinner we put on, then a very wise mom of a child with diabetes told me, “Do what you can” when you can” there will be times that you can do more and times that you can’t, it’s the fact that you do something! We all need a break sometimes just don’t forget to come back after your rest, because diabetes does not rest and we need you!

I share this with you because when you are battling this disease for so long sometimes you do need a little breather, and we all can continue to support our cause in so many ways. So no matter how small the event, no matter how little the donation, do “what you can” “when you can” and together we will all make a difference. As people with loved ones that suffer from diabetes, we have not only the challenge of managing our loved ones diabetes, but the “Honor” of being a part of their cure!

Give Yourself a pat on the back for all that you do even when you do need to take a rest, we will carry you while you rest to get reenergized and welcome you back with open arms! Support your local Diabetes Organizations.

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How Do You Keep Your Site On?

2010-04-06T16:50:00.000-07:00

With the summer weather quickly approaching we will all be dealing with swim season and with swim season comes the never ending question “How do you keep your site on”?. Personally we have tried everything and nothing has really worked for us.

My daughter especially likes to be in the pool for long periods of time, she will get out of the pool test, than get right back in, she tends to run low during swimming so we are careful on what we give her during this activity. She will get out of the pool at lunch time, plug on her pump (if the site hasn’t already come off) than bolus eat and go right back into the pool.

We were on vacation this past week and we had several days where we have actually had to change her site twice in one day! We have tried the tape, and all of the other remedies such as the liquid stuff that you have to actually use a removable detacher to get it off, except of course if you are in the pool the majority of the day because than that will even come off. (note we do not allow her to be without her pump for this amount of time she has to get out test and plug in frequently) which makes it so much harder to correct a high or to even eat a snack when every time you turn around the site has come off.

So I thought I would put this question out there to see if anyone has a secret way that might really work to help keep sites on and save our children from having these endless site changes, not to mention the use of all of the additional site change supplies that have to be used.

So let’s hear it “How do you keep your site on!

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What Does It Mean?

2010-04-02T10:57:00.001-07:00

What Does It Mean?

We have a 2000 Chevrolet Venture, it’s a 7 passenger vehicle which has been great for carting everyone around. When you have 3 children and all of their things and their friends to bring all over having a van is a great way to go! We also like to go to Myrtle Beach and driving 10 hours in a van has made the trip comfortable and has allowed us to carry everything we need with us.

Since Adam is now 21has his own car and rarely travels with us and Patrick is 18 and has his own car also, that leaves us with just Nikki! So I tend to tool around with our Honda Civic, who wants to fill that gas tank on the van when it’s just her and I! So our van now sits a lot more than it ever has before. We are getting ready to take a short vacation to Myrtle Beach and you got it my husband and I don’t want to drive the van for only 3 people! Nikki of course wants us to take the van because than she can have all that extra room.

Even though we haven’t been using our van an awful lot over the past 2 years I have always justified it by saying its great when we want to go on vacation or need to travel. So as this vacation approaches us and both my husband and I don’t want to take it I wonder.

I hate the thought of not having our precious van, full of memories and fun times, our precious vehicle has served us well and now sits more often than not. What does it mean? Approaching an empty nest?

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The Hidden Expense

2010-03-30T16:06:00.001-07:00

People will often comment on the high cost of having diabetes. Diabetes is an expensive disease and it is also a disease that carries a lot of hidden cost. I don’t think people are really aware of the true hidden costs to people who have diabetes? Here is a list of the things that cost us money constantly that most might not relate as an expense to having diabetes (unless of course you have diabetes, than these things you will understand) .

The cases of drink boxes we supply to the school and to have on hand at all times
The snacks that need to be readily available at home and at school
At the beginning of the year the supply of pencil boxes filled with cake gel/drink boxes etc.
The fast acting sugar that needs to be available in all of our cars for drivers with diabetes
The cases and clothing that hold the insulin pump/meter/sensors
The batteries we go through!
The time off from work for the doctor appointments and emergency trips to schools
Extra everything for trips and traveling

I have just added a few because I was shopping at Sam’s today and had to replenish our supplies for home and school and just was amazed at the hidden costs involved that people just don’t understand. I am sure you all will have more that you can add to my list!

Oh and let’s keep the list to items we have to spend money on that are not even “Medical” because that’s in a category all to it’s self!

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Julie

I Don't Want To Go!

2010-03-26T07:07:00.000-07:00

We have been having terrible blood sugars with our daughter Nikki who is now 12 years old, It could be that we are exiting the tween age group and will soon be entering the teen age group (ok I am looking for excuses). I have heard as they near the teenage years the numbers are more difficult to control. This past 3 months have not been good. We have also had our moments of not wanting to test or the famous I forgot to test and bolus (this I will never understand how you forget when you have been doing it all your life). It’s a time where I feel that I have lost control over being able to rein in on all of our blood sugars. ( I can’t believe I am saying this but I actually liked having control of everything she ate and what the numbers were when Nikki was small) as she gets older I have to rely on her to do the testing and blousing, which is becoming an issue. The high blood sugars also do not make for a "nice" Nikki, so I hope you can feel my frustration and aggravation at the constant nagging for her to test and bolus. I can check and double check and believe me I get the answers I want however, looking at her pump tells a different story.

As Nikki’s next doctor appointment approaches (the last one wasn’t good) I don’t see much of a change. I can honestly say I would rather not go to this doctor appointment. It’s terrible but I feel that these appointments are more about us than about her. It is very difficult to be with them 24/7 to try to make sure they are doing what they should. Yes, I am checking the pump, Yes we are reminding her to test, Yes we are making sure she remembers to bolus (when she is with us). However, she is no longer with us 24/7 so now we have to rely on checking her pump history to see what she has been doing. Yes we have tried the sensor (she totally ignores the alarms). I think we are going through a combination of the age (almost 13) and the “I forgot” stage. Next week is spring break she will be back in my control! New senor will start and hopefully we will get it going on the right track again.

As we crack down once on trying to find a positive way to reinforce good diabetes practices I simply dread this upcoming appointment. So I have come up with the solution! I am sending her in with dad and I am taking the day off! Stay tune !

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As We Prepare

2010-03-19T08:41:00.001-07:00

As We Prepare!

We are in full swing with getting ready for the 17 families that will be attending the Pump Wear Inc. “Caring & Sharing, diabetes weekend. This will be our 3rd annual weekend where the chosen families will attend the “Double H Ranch” in Lake Luzerne New York; this is a Paul Newman camp.

I can’t tell you how much this weekend means to all of us. This weekend is the dream of many to be able to put together a totally free family weekend for families that have diabetes (transportation not included) We are so fortunate for the Double H Ranch and the wonderful Angels (that’s our loving committee listed below) that have made this weekend possible.

As a mom of 3 children with diabetes, I remember oh so well never being able to go anywhere and really just feeling that no one else get’s it. I often felt that I was alone in my quest to keep everything going and I felt that we as a family just needed a break where we could have time to focus as a family rather than the focus always on the diabetes. That’s why a weekend away where diabetes is the norm and fun and relaxing are the goal was so appealing to me. I remember wishing that something like this was available for us. What I love about this weekend is that families are not chosen based on anything other than the recommendations that are sent in and our group of Angels simply pick out those that sound like they could really use a “hug”. Believe me it is really hard to choose because we know that so many families could use a weekend like this.

We are getting everything ready for the families’ arrival we want to make sure that this weekend is special to all of them as a family.

We wanted to share our list of “Angels” as we call them, the women behind this event, these wonderful women, fund raise, organize, follow for forms, fund raise, donate, solicit for donations and so much more, oh and did I mention they fund raise!

Kathy Striker
Debbie Bennett
Katie Marschilok of Medtronic
Kimberly Sanger Jones
Anne Levitt of Animas
Julie DeFruscio
Dawn Juneau

The 2010 Caring & Sharing weekend will be April 23-25th, shortly after the weekend in early May we will post the updates for recommending your family for the 2011 weekend.

A huge hug and thank you to the many people, companies and friends that have help to support and make this weekend a success and a special thank you to The Double H Ranch for their staff and wonderful place to hold this event , they truly know how to make this weekend special!

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View Previous Caring & Sharing Weekends

Use It Or Lose It

2010-03-16T07:19:00.001-07:00

Use It Or Lose It!

Are you one of those people that put things away for a special occasion? Well say hello to me! I often will take something that I love such as a perfume or outfit and save it for a special occasion. I have even done this with my children’s clothes and things. Let’s save them for a special day or event.

I started my spring cleaning and started to empty drawers, upon doing this I found a bottle of my favorite perfume that I was saving, the perfume had been there for so long that it had evaporated. As I continued to clean I found a couple really nice sweaters that I had totally forgotten about, of course as I look at them today they are really no longer the style that I like, yet they are like new. I am sure I had stashed them away for that special occasion.

As I continued through the house I opened my daughter’s closet and looked at some beautiful dresses that she loves and yet I have told her don’t wear that dress save it for a special occasion. I have now revisited my thinking, that special occasion has arrived! Why not enjoy these simple pleasures now. If you love it use it, wear it. If my daughter wants to wear her Easter Dress why not? What are we waiting for? Am I really denying the pleasures of many days of enjoying something for the satisfaction of knowing that I have it saved for a special occasion?

Often I will put a treasure away to simply be forgotten. Let’s treat every day as special and enjoy our treasures now with the ones we love. This way we will enjoy hours and days of enjoyment now!

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Good Karma

2010-03-12T07:23:00.001-08:00

Have you ever met someone that everything seems to happen to, the bad, ugly and more? Have you ever listened to this person talk and think that by the time you leave them you feel like the life has been sucked right out of you? Do you find yourself avoiding them at all costs because they never have anything good to say?

I have always been a firm believer that having a positive attitude and working with the positive brings good karma. So no matter what we are doing I always try to find the silver lining and look at the positive. I love finding a way to make things fun. It has been my experience that when you can extend a positive attitude and vibe to others, you will bring out the positive and more. So being there for others, helping people and finding that silver lining no matter how small really does bring you back the good karma. It’s hard to explain but you can just feel the good around you.

Don’t allow those who are never happy with all the wonderful little things life has to offer to weigh you down. You will get so much more enjoyment from the people that are happy to send a smile your way. So avoid the negative well wishers and move on to the positive, you will be amazed at how your positive attitude will bring positive good karma your way!

Sending you all Good Vibes For a Wonderful Life!

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Julie

Boys Are Easier Than Girls!

2010-03-05T08:15:00.001-08:00

This is entirely my opinion based on my experience of raising 2 sons and 1 daughter.

Maybe I would feel different if I had the girl first and the boys 2nd but we have raised 2 sons who are several years older than our daughter, Adam 21, Patrick 17 and Nikki 12.

My son’s when growing up went to school, participated in sports and various activities, they had friends that came to the house and hung out and I don’t ever remember there being an argument or problem when a group of them hung out. (they took care of it themselves) There could be a group of 2 or 5 and they all seemed to get along, they might get rowdy and loud but they seem to just mesh well. Never “Drama”

Boys seem to be more even keeled they never talked about others, they never purposely excluded others, they never voiced openly who they liked and disliked! Now maybe they just didn’t express all of this around me, but I seriously can not remember a time when our boys were ever involved in the drama that seems to surround girls.

If you spoke loudly to our sons or even if my husband would look at them a certain way they would instantly behave or at least show that they knew they were in trouble.

I saw it coming right from kindergarten,our little girl was going to be different from our boys, girls are very open with who is doing what, who is going where, what they are doing, and definitely of what they want. I find myself constantly being on my daughter, to not get caught up in the drama that might surround friends. Trying to get her to understand that it’s better to enjoy each friend for what they are.

With boys they could tell a friend something and you would never hear that what they said was all over the school, let alone getting back to anyone. With girls the minute they open their mouths and say something to someone it is all over the place. Especially with Facebook and texting. There is absolutely no down time.

The boys if I told them to put there things away they would do it, with my daughter it’s “in a minute” which never comes till I am threatening.

The boy’s when in trouble would quake with just a stare or stern talking too, with my daughter it takes finding the thing she wants to do the most and taking it away!

The boy’s seem to learn quicker in the aspect of what makes mom happy, the girls could care less.

The boy’s being home was fine; with girls being out in all the drama seems to be the in thing.

The boy’s seem to form a strong bond with a couple friends, girls they seem to keep looking for the friend that they can stand for the moment
Yes my daughter gives us a run for the money, she’s fun, especially creative, caring and loving, but boy oh boy does she have her days!

And don’t get me started on the “emotional outbursts” I think because the boys were so easy I am in shock over load from all that goes on with the girls!

P.S. I LOVE HER THE MOST!!!!!! (added by Nikki)

P.S.P.S. - I know that this is not the case with everyone, this is just my view as I am living it!

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I Hate To Cook!

2010-02-28T08:57:00.001-08:00

For those who know me well you will understand when I say I don’t cook. I’am not good at it and I really don’t enjoy it. My daughter has grown up thinking men cook! My husband does all the cooking and my boys cook when he doesn’t. I do finger foods and pepperoni bread but that’s about it.

Well Nikki and I decided to surprise everyone the other day and cook supper! With desert! So we went to the market and got everything we needed, spaghetti, sauce in a jar, salad, pre-made meatballs, Italian bread (we thought), and carrot cake in a box to make with frosting.

We got home and started our supper! Nikki set out to make the carrot cake, she has done cooking with her father and at school they are teaching them to cook (lucky Nikki) so she did really well. We had everything ready to mix and I went to get our cake mixer, this is the same cake mixer that we got as a wedding present 31 years ago (remember I told you I don’t good so baking is really not my thing either). So we plug it in and it starts to mix than stops?? We can’t figure out what is wrong with it so we plug it in another outlet, it does the same exact thing, starts and than stops. Well we blew out 2 outlets I guess, no problem we decided to just stir it by hand (after all isn’t that what they did before mixers). We made our carrot cake, and some banana bread. Put together a salad and put on the sauce and meatballs.

Mark (my husband) came in and was thrilled that we surprised him, Patrick came in and said he already ate (after all our hard work) . He has a new job at Moe’s and loves it but not sure yet what it’s doing for his blood sugars and diet! The Italian bread we thought we got was rye Italian bread. Overall it was a good dinner. Nikki and I had fun, she especially liked telling her dad how we blew the outlets in the kitchen.

As we finished our meal in about 20 minutes and I started the chore of cleaning up the mess, I thought. 2 hours to prepare it, only us 3 of us interested in eating it, and 40 minutes to clean up the mess. Nikki had fun shopping for everything, being in charge of her cooking skills, setting the table and just literally having fun “Priceless”

P.S. Patrick ate meatballs later that night and said they were good!

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You Never Know

2010-02-23T13:00:00.000-08:00

You Never Know

This past week our children had the week off and we did several day trips. For those of us with children who have diabetes we know the drill of making sure that we have everything under the sun with us for the “just in case” because lets face it you never know when you will have an episode .

One of our day trips was to the NYC Titanic Exhibit. This was a wonderful exhibit and we learned so many interesting things about this maiden voyage such as did you know that the life boats were not full! Lot’s of people died who did not have to simply because the boats weren’t all full when they launched them. They also assign you a name of a passenger and they tell you what class you were in and a little bit about the person. You have to wait till the end to see if you survived! Really, really interesting material.

As we waited in line for our tickets to the exhibit Nikki says to me I feel low! I instantly had her test (funny how you learn to test standing in line holding all kinds of things). She showed me the meter and it was 47! No where to sit and we are waiting for our turn in line, we quickly have her drink a large juice box. She is totally acting ok like no biggie so we continue on in line. Right after we get our ticket she says she thinks she is getting low again? Ok, we find a seat and retest, now we are 37! This is where I totally mess it up every time, because now I give her another drink box, a stack of chips, and a couple pieces of chocolate! I am famous for taking her from 37 to 500 in record time. We tested 15 minutes later and she was 88 on her way back up (but how high up is the question) . Since we were in NYC doing a lot of walking (that’s probably what caused the low) I decided to wait till lunch to make any corrections.

We went to David and Buster’s for lunch a fun adult like Chucky Cheese, where she was 209 (not bad for all that she drank and ate). So she was able to correct and enjoy the rest of the day. So you never know when it will hit you so try to prepare for the unknown!

Here is a list of the items I carry with us that help me make it through most episodes yet not be too weighed down. I take : 2 drink boxes, dex 4 tablets, a snack, a site change, a bottle of insulin, a battery, a spare test kit, a couple packets of sugar (from a McDonalds et) spare test strips, a glucagon, injector and fusion tape.

Oh, on the Titanic Nikki was first class, I was 3rd class. I was an 18 year old mother with a baby and Nikki was a 37 year old lady. Hurray we both survived!

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Julie

Visit Information about the Titanic Exhibit

College Bound

2010-02-16T11:12:00.000-08:00

College Bound!

Well, as most of you parents know they have to grow up sometime! Our Patrick is turning 18 this March and he will be graduating this June. We have been on the college search for over a year now and it looks pretty certain that he will be going away to college! (Yes I was still holding out that he might decide to stay close to home). There is no doubt that there will be tears in our house come August of this year! (I don’t want him to go) but I am being the strong person that I am and putting on a happy face. Like Patrick says “Mom you still have 6 months don’t cry now!”

Patrick has done a lot of research on what he wants in a college and has visited many of them. He wants the college experience of living on campus, yet wants the small college feel. Doesn’t want the big campus. He was looking for a place where they offered an education as a history major (that’s today’s thought) from what I am told their major can change. He loves history and eventually either wants to teach or work for a museum etc. So I was not surprised that the College we visited yesterday would have that home town feel, be charming, be historical looking, the lunch room looks like something out of Harry Potters book! To top it all off it overlooks the most gorgeous Lake Cayuga

It’s 3 ½ hours away from us, yet I thoroughly enjoyed the drive out there. My concerns while visiting the college were all pertaining to the health issues, yet I find that at this age it really comes down to making sure room mates and teachers are informed but they have to be informed by the student (you know that Hippa law ). The school really seems to offer a lot of individual attention and I definitely got the feeling that this would be a good fit for him. As we walked around the campus I truly fell in love with the feel of this place, I could even find my way around (which is saying a lot because those that know me, know that I get lost going around the corner).

Patrick has already been accepted at this college of choice and as we prepare to send in his deposit I vow to cherish the next 6 months with him!

P.S. August is going to come way to fast! I am also now going to have to come up with a diabetes college bound kit!!!

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Julie

He Remembers

2010-02-08T12:55:00.000-08:00

He Remembers

I was having lunch with my 21 year old son Adam the other day and we were talking about growing up and do you remember when. Some of my favorite questions to ask are Did you have a happy childhood, his response I had an awesome childhood. I then took it further and asked Adam what he remembers from his childhood (don’t you ever wonder what your kids remember and why?). Here is his response:

I remember watching “Full House With you snuggled up in your bed
I remember making pepperoni bread with you (this is funny because its really the only thing I cook)
I remember getting our Christmas Ornaments with our Name on them every year from pop (grandfather who has since passed)
I remember the Christmas you surprised us with Nana & PoP being here Christmas Morning When we woke up.
I remember when we went to Vegas on a shoe string (he was 7) and we went swimming and we snuck into the Flamingo Swimming Pool because they had a nicer pool than where we were staying at. (ok you have to put a little adventure into your life)
I remember you holding me when we were trying to get out of MGM that same vacation because it was a mob scene with Mike Tyson and you were afraid I would get lost (who would think he would remember that)!
I remember getting my picture taken A LOT
I remember lots of things mom and they were all with you!

I think he pretty much sums up the good things that matter, and not once were they material things, and what I totally found surprising was that he never once mentioned that he remembers getting diabetes. Giving Hugs, Time and Kisses really are the best memories.

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I Feel Like I Am Banging My Head Against A Wall!

2010-02-02T15:52:00.001-08:00

Do you sometimes feel like you are banging your head against a wall? That’s the way I feel every time I hear someone tell me that they know all about diabetes because their grandmother has it makes me want to explode. Of course they are talking about type 2 diabetes.

Although the two disease outcomes are the same there is a clear difference for someone with type 1 diabetes and someone who has type 2 diabetes. I don’t like that they group them together. The way I try to explain it is that people with type 1 diabetes do not produce insulin therefore they are insulin dependent for life, what they eat, how much they eat and no matter how in control they are of their diabetes they will always have to take insulin to live. A person with type 2 diabetes is different in the fact that they can often control their diabetes without having to take insulin by regulating diet and exercise they still produce insulin but their bodies don’t use it well someone with Type 1 diabetes does not produce insulin at all and no matter what they do they will always have to take insulin it is not a life choice and the control is out of their hands all they can hope to do is to control it as close to a normal blood sugar as they can in hopes of avoiding complications.

I feel for all people with type 1 and type 2 diabetes because both forms of the disease are so very difficult to control and the outcome is devastating to both. However, I am irritated when people tell me they don’t need to know about type 1 where my child is concerned because they know all about diabetes. Then you ask them what they know about it and they tell you that their mother, grandmother and other family member has diabetes but they take pills or regulate it with food and exercise and on occasion may have to take insulin.

I would like to say for the record: Type 1 diabetes is different! It’s the harshest form of diabetes that has no rhyme or reason! Just my 2 cents!

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The "Mommy Meter"

2010-01-26T15:08:00.001-08:00

The Mommy Meter!

If you are a parent of a child with diabetes you will totally understand where I am going with this! When our first child was diagnosed she was 2.5 years old, we were on such a roller coaster of blood sugar highs and lows that we eventually ended up moving her into our bed just to save the time of having to get up and down so much and to try to grab some precious moments of sleep while monitoring if she was alright. Those of you with little ones can really relate to being sleep deprived. Until you have a child with diabetes I don’t think you can entirely understand how all those sleepless nights can really take their toll. It amazes me how I can sometimes just wake up and know that I need to test her! It’s like there is a Mommy Meter in me!

As Nikki got older and we installed baby monitors into bedrooms we weren’t up and down quite so much. Two years after Nikki was diagnosed the boys were diagnosed within 4 months of each other and our house took on a whole new meaning of the words night owl. There were constant night checks, blood sugar corrections and that need to just make sure they were all alright. This we would do automatically every night based on everyone’s blood sugar before going to bed. But every once in a while even though things all appeared to be right something would trigger in me to check someone’s blood sugar and 9 out of 10 times I would catch a high or a low. How did I know to check? It’s what I call my “Mommy Meter”. Just a feeling that comes over me to get up and check.

As the years have come and gone and with the help of sensors and new technology we now find that we can catch up a little on some of that lost sleep. Yet some nights you just get that sense that wakes you up and tells you to check a blood sugar and low and behold you catch a 33 blood sugar! That’s my “Mommy Meter”at work again telling me to check. I have found that the Mommy Meter has been more accurate sometimes than all the technology out there so I say always go with your “Mommy Meter” and yes I know there’s a “Daddy Meter” out there too.

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Julie
Mom of Adam, Patrick & Nikki

It's Not Like It's A Birthday!

2010-01-19T13:03:00.001-08:00

Where has the time gone, on June 19th of this year it will be the 10th year since Nikki Tyler was diagnosed with type 1 diabetes. This date sticks in my mind and so does August 25th the day of Adam’s diagnose and November 11th the date of Patrick’s diagnosed. These dates are not like a birthday where you want to celebrate, yet they are significant dates that mark life changes in our life.

So being the positive person that I am, I am reflecting on all that is good in our life as we approach this 10th anniversary. Everyone is happy and healthy and all are pumping so no more shots. We have new technology to help us today such as sensors and better meters. We are finally sleeping through the night (once in a while). We have made so many new friends that we would other wise never had met. We have grown and learn so much, I never thought that I would be able to change a site in a moving car all in a matter of minutes. We have learned to be an advocacy for our children and how to support finding a cure for diabetes, we have grown in so many ways! Yet there is one important lesson that our family has learned that has made everything bearable and that is that we “Are Not Alone”!

So thank you to all our relatives and friends and especially the friends we have met along the way for giving us the hope, encourage, laughs and hugs we needed! I hope in another 10 years I will be writing to say 10 years ago they found a Cure For Diabetes.

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Julie, Dawn & Our Families

It's The Simple Things!

2010-01-12T16:25:00.001-08:00

Tuesday night in our house is the one night where everyone has something to do, except for Nikki and I. So Nikki and I have started to go out to dinner just the two of us. We go to our favorite restaurant “Carrabba’s” and enjoy our favorite bread and herbs (that’s what we really love) they know us there and always give us extra herbs! Nikki always gets pasta (we chase numbers afterwards) but she really enjoys it.

Tonight as I sat listening to Nikki talk non stop about her day I thought how nice to be able to have this time to just sit relax and enjoy her. No rushing around, no black berries (left it in the car) no distractions just time alone catching up on all that is Nikki.

I heard all about the drama of Middle School life, how she likes her new hair cut, where she wants to go to college (yes she has it all planned out) how she is not going to date till college (lets hope she sticks to this one) and how much she is enjoying her sewing class.

We forgot about diabetes for the night and just enjoyed each other.

I realized as we were getting in the car to come home how special this time is and how quickly she has already grown up. So if you have the chance to sit one on one with your children and put the diabetes aside for a little while and just enjoy them you will find that you actually look forward to the next Tuesday night.

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Do you need to test?

2010-01-08T08:44:00.001-08:00

If you are a parent of a child who has diabetes take this test for one day count the number of times you ask your child that very question “ Do you need to test” .

I did this the other day and I actually asked the question a total of 9 times, I not only asked the question verbally but I texted the question as well. Now I have 3 children with diabetes so here’s the break down, Adam who is 20 was asked once when we were out to eat, Patrick who is 17 was asked twice, once when we were out to eat and once before he went out to drive the car. The other 6 times were for Nikki, and one text to Nikki at lunch time to see if she had tested. (does texting count)

In thinking about this question I realized that the words “Do you need to test” seem to slip out of my mouth every time I think that someone is being difficult, when someone is loud, when someone is hyper, when someone is being nasty, when someone is having a difficult day, when someone is hungry. It’s a mom thing I know and I attribute all of those things as indicators for a low or high blood sugar, but I do realize that I am the broken record of all broken records. I vow to rephrase the question! (could you do me a favor and let me know what your blood sugar is?).

But I am not alone, the other night we had friends over and a girlfriend of mine was in our kitchen with her daughter having a disagreement over something and my husband walked by and asked “Does she need to test”. (she doesn’t have diabetes). I think we are all programmed!

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Oh No, It’s Ski Season!

2010-01-05T06:17:00.001-08:00

Yes, I am mom of a child who loves to ski! Actually I have 2 son’s that love the slopes, Adam loves to snowboard, and Patrick is our skier. We are fortunate to have a ski program that he has been in since the 8th grade, but I still can’t wait for the season to end!

Yes our kids can do anything, but that doesn’t mean that mom isn’t home worrying and waiting for confirmation that another Tuesday Night ski night was a success.

The things I worry about, First I worry that he has a helmet on (yes I want him wearing a helmet), he tells me he is wearing it but is he really ? Then I worry about all the things mom's with children with diabetes worry about, what if he has a low way up on top of the mountain? Does he have a fast acting sugar on him? Is he skiing with others that are prepared to assist if he goes low? Luckily he rides a bus home, but he has a season pass and often goes out to the ski resort with a friend. Does he have a change of site with him? Does he have his Dex 4 tabs in his pocket? Drink boxes in his ski bag? (Can’t take those on the slope he tried that once and it wasn’t pretty).

So tonight starts the ski season I ran through the list this morning (there I go again with my lists), and he assures me he has everything! Only 12 more weeks to go!

Note: The Waist Pump Bands are a great way to keep your insulin pump secure and helps insulin from freezing during winter sports. The pump band allows you to position the pump where you like it best and it is close to your body offering your body heat to help keep insulin from freezing.

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My Car Screams Diabetes!

2009-12-29T05:45:00.000-08:00

I am one of those people that always wants to be prepared and that means always having what I need in case of an emergency. My car has become the carrier of all that is diabetes.

I have 2 items in my car that I never leave home without and they are my “Car Visor” which carry’s a fast acting sugar dex4 (we love dex4) and my purple organizer loaded with test strips glucagon, pump site change,needles,spare test kit, another dex 4 and spare batteries. I always swap out what has expired with the change of season and this has worked out great. So you can imagine my surprise when I was cleaning out my car this week and found:

In my glove compartment I had not 1 but 4 boxes of test strips (all expired ) and i am not even sure how long they have been there. In the slot of the passenger door is a glucagon (expired) a open box of needles. In my arm rest where i store my cd’s are 3 drink boxes (now this was really surprising that they did not open and leak) but they too have expired. In the pocket holders behind my seats was another box of test strips (do you think I am afraid we will be without?) a test meter that doesn’t work, (this was left behind by some child who’s test meter needed batteries. Where i keep change are 3 pump batteries and 1 meter battery. The funny thing about all of this is that all these things were brought into the car at one time or another and I don’t remember bringing any of them into the car. All of my supplies are in my organizer or car visor. So all of these items test strips etc were left in the car by one of the kids when in a hurry they grab a box from the house take a vial and leave the 2nd vial in the car, grab an extra drink box, needed a battery for a pump and swapped then out in the car leaving the used battery in my change holder.

If you are a passenger in my car it screams diabetes! From the test strips, car visor, drink boxes and meters, how could you not know that a mom of child with diabetes is on board! Well I finally got everything cleanned up and thrown out and I am back to my nice neat Car Visor and purple organizer taking care of all my diabetes necessities.

I dropped my daughter off at a friends the other day and on the seat she left a drink box and 1 box with 1 unused vial of test strips, I automatically picked up the drink box and went to put it in my arm rest and threw the vial of test strips in the glove compartment!
Here we go again!

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Is It A Good Idea?

2009-12-25T16:47:00.001-08:00

Is It A Good Idea?

I believe every parent who has a child with diabetes will experience this at some point in their child’s life. When the testing frequently becomes an issue.

I use to believe it would get easier as they got older, I no longer think that way. When our children are young we have virtual control over everything they eat, how often they test and even though there’s just no controlling diabetes we at least could fool ourselves into thinking that we had a handle on what was going on.

Then that fateful day comes when our children go off to the Middle Schools and are pretty much responsible for their daily testing of blood sugars during the day. You would think that a child who has had diabetes all of their life would just automatically remember to test before eating, when feeling high or low. Now that they are away from us and taking on more control of their diabetes I long for the way to make this a positive experience. I am tired of the hounding text messages checking to see if my child is testing, if she remembered to bolus, then downloading meters and pumps only to find out that what I thought the numbers were are not quite the same as the ones I downloaded.

So my question is this, with the New Year Approaching, I am adapting a new strategy! I will be looking at the pump each day to ensure proper testing and blousing, at the end of the week if we have had 4 days (I have to allow a day for the oops I forgot) of doing what we need to do than we will be giving out a reward, something fun like movie tickets, a trip to Target or something else that is special for a job well done.

So do you think it’s a good idea to reward our children for taking on the responsibility and care of their diabetes? I will let you know our results, Remember our kids are kids first and as hard as it is we still need to make teaching them what they need to do a positive experience.

Lists, Lists & More Lists

2009-12-22T07:08:00.000-08:00

Lists, Lists, & More Lists!

You know its bad when you can’t find the list! This Christmas I started out with a list so I would know what I had already purchased, who was getting what, sizes etc. Well early into my Holiday Season, I lost that particular list. Now I am left with that kind of unfinished feeling, like I forgot someone, or the feeling that someone is getting a whole lot more than everyone else? Ever had that feeling?

When diabetes first entered our world 10 years ago (has it really been that long). I use to write everything down, I could tell you the exact time that Nikki ate something, the number of carbs, the insulin she took, when it peaked etc, etc. At that time I walked around with notebooks, a notebook for blood sugars, my list of things I had to do, a list for every day things to do. I had so many lists I needed a bag just to carry my notebooks of lists.

Then technology took over my lists became fewer and fewer as I tried using my blackberry to make lists, my outlook and my apple computer, but nothing for me works better than my good old notebook! I do so like my lists but I really like seeing them on paper and putting that little check mark next to the items as I complete them. I somehow feel like I accomplished something when I can put that check mark next to something I had to do! Of course if my Christmas list was on my blackberry I wouldn’t have lost it!