Teenagers Helping Each Other

Julie Mom to Adam 22, Patrick 18, & Nikki Tyler 13

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The Download Tells All

When Nikki was little I felt like we had so much more control on her blood sugars, now that she has turned 13 we have found that where we thought we had control was really a nice fantasy in our mind, because she has all the control now.

The last couple of doctor visits have been telling and the one we just came from was a real eye opener to us on how we really don't have the control at all.

I will be doing a vlog with Nikki on the outcome of that meeting and how we are handling this newest development. I just wanted to reach out to all of you that are feeling the same way, as much as we give them the tools and remind them to do all the right things the ultimate decision on what they do is up to them.

We are working to instill the importance of proper care and have our children "Own" their diabetes. Stay tune for an interesting vlog

Julie Mom to Adam 22, Patrick 18 and Nikki Tyler 13

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We Need Your Help!

We need your help! We entered this contest a couple of months ago called "Love A Local Business" and we came in 2nd we have the opportunity to try it again and we would love to win this opportunity of a grant that could mean more families go to camp, more products can be developed.

It's really easy to help us you simply go to "Love A Local Business" and hit I am a fan of a business, type in Pump Wear Inc. and Cohoes NY. Than you simply vote.

You can only vote once. We really appreciate your help!

Julie Mom to Adam 22, Patrick 18 and Nikki Tyler Officially 13 years old!

We hope you all have a wonderful Thanksgiving and holiday season!

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Sometimes They Surprise You!

Today is Nikki Tyler's 13th birthday! Yes 13 years of our little girl, she has grown so much over the years and we love her so much. Over the years as siblings grow they constantly take pleasure in picking on each other and my children are no different. As a mom you sometimes wonder how can they continue to annoy each other and how you are going to stay sane during it all.

Well I am here to tell you that "sometimes they surprise you". A tradition we have is whenever someone's birthday comes around we all go out to eat to that person's favorite restaurant. This year Adam our oldest had to work so last week he called his sister to see if she wanted to go to a movie, he took her out to a movie, lunch and got her a gift card. Since Patrick is away at school we knew that he would not be available for dinner either. Yesterday a card came addressed to Nikki it was from Patrick telling her that he was sorry he wasn't there to give her a hug and kiss for her birthday and that he loved her, enclosed was a book store gift card for her favorite book store.

Nikki was so happy first that she spent a day with her big brother and second that Patrick who she takes great pleasure in annoying constantly took the time to actually write her a card, of which she said she is going to save as proof that he loves her!

So just when you think you have seen it all they surprise you, and this kind of surprise I will take any day of the week.

Happy Birthday Nikki Tyler who is now officially 13 years old.

Julie Mom to Adam 22, Patrick 18 and Nikki Tyler 13

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You Got To Love Them

Patrick is away at school and I have to tell you , "You Got To Love Them". I am loving that since he has been away he has been texting me, calling me and skyping me. With today's technology it has made having him away from home so much easier.

The other day he wanted to know why I never answer his skype calls! It's so funny because he must call every time I am away from the desk! He also wanted to know why i sometimes don't answer him on facebook? Well sometimes I have facebook up but i am not at my desk or I am working on another screen.

I just want to hug him because I love that he wants to see or talk with me, you just can't ask for more than that. So to my Patrick I say I will watch for you on facebook and listen for your skype calls because you are a vip call I don't want to miss, hugs!

Julie mom to Adam 22, Patrick 18 and Nikki Tyler 13 (almost)

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6 things I Wish They Told Us

6 Things I wish they had told me when we were first diagnosed with type 1 diabetes,

I wish in the early days that they had told us that it was ok to be overwhelmed and that we were not alone, that we had been directed to a support group right away

I wish that we were told that we would be facing up hill battles that would test our strengthen as a family and our faith.

I wish they had told us that we were working with a disease that does not allow us to control it

I wish they had told us that our family would find a bond stronger than anything we could ever dream of

I wish they had told us that we would make friends that would become an important part of our lives, that these friends would be there morning noon and night, the common bond we all share would make us all stronger.

I wish they had told us that we as a family would be able to allow our children to grow and do what ever they wish to do with their life, that we would find the way to help and support our children so that they can accomplish all that they want to and that we would have this inter circle of friends that would always be there to assist us. We will Survive

November is National Diabetes Awareness Month with November 14th being world Diabetes Day, spread the word its time for a cure.

Julie Mom to Adam 22, Patrick 18 and Nikki Tyler almost 13 All have Type 1 Diabetes

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Give The Gift Of Memories

For years we talked about being able to offer insulin pump cases with pictures that people send us so that we can make their insulin pump case truly unique and original. This past year we were finally able to provide this to everyone. We are finding that the "Picture That" insulin pump cases are becoming very popular with kids and adults sending in their favorite pictures to proudly display on their cases.

I had one done myself with my three children on it and wear it all the time but i use it for my cell phone! I have had people ask me where I got it simply because they too would like to have some of their memories put on a case as well.

With the up coming holiday season I plan on giving these as gifts! What better way to bring in the holiday than by cherishing memories.

Another really neat idea with the gift of memories is that you can have more than one case done and slip them all on a belt telling a story! Many many unique ways to savor the memories. We hope that you will enjoy our Picture That cases as much as we are.

Julie, mom to Adam 22, Patrick 18 and Nikki Tyler almost (13)

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Give The Gift Of Awareness

November is National Diabetes Awareness month, with November 14th being World Diabetes Day. Lets take this month to give the gift of awareness to those that we know. I think it is timely to send friends and families the signs of diabetes. There are so many families that are touched by diabetes we hope that you will use this month to bring awareness to all that you know within your communities.

Warning Signs for Type 1 Diabetes

November is National Diabetes Awareness Month

Knowing the warning signs for type 1 diabetes (juvenile diabetes) could save a life.
Warning signs of type 1 diabetes (these may occur suddenly):

* Extreme thirst
* Frequent urination
* Sudden vision changes
* Sugar in urine
* Fruity, sweet, or wine-like odor on breath



* Increased appetite
* Sudden weight loss
* Drowsiness, lethargy
* Heavy, labored breathing
* Stupor, unconsciousne

If you or someone you love exhibits one or more of these symptoms, call a doctor immediately.

Education about the symptoms of type 1 diabetes is critical because type 1 can easily be mistaken for more common illnesses, such as the flu. JDRF has literature which lists the symptoms and treatments of type 1 diabetes and hypoglycemia (low blood sugar)--available for download here.

Each year, approximately 30,000 Americans are diagnosed with type 1 diabetes; over 15,000 are children. That's 35 children each and every day, approximately one child per hour.

Misdiagnosis can have tragic consequences, as the story of the Futrell family of Michigan sadly confirms. Knowing the warning signs of type 1 diabetes can save a life. Please share what you've learned with everyone--family, friends, teachers, doctors. Until a cure is found, the more who know, the more lives will be saved.

Please help JDRF raise awareness about the warning signs of type 1 diabetes--a chronic, debilitating autoimmune disease that is most often diagnosed before the age of 30. As with many diseases, early diagnosis goes a long way toward preventing serious health problems, and even death.

Julie, mom to Adam 22, Patrick 18 and Nikki Tyler (almost 13)

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Where Do You Wear Your Site

We recently had a problem with Nikki’s site, she noticed that it was hard and hurt to the touch. She typically likes to wear her site on her thigh and she rotates legs and spots on the thigh. When she was younger she would put the site on her upper butt, now that she is older and changing her own site she likes to put it where she can reach it. She will not try the tummy, why I don’t know other than she thinks it hurts there.
Her leg became infected at the site location , she had this type of problem once before and we had to hot pack take meds and it finally went down and cleared up. I automatically started the hot packs got her into a doctor and she is now on the meds. Needless to say no site changes on that leg for a while so we are back where to put her site if she doesn’t want her tummy, the butt is ok but not really where she wants it, so she has it on the one leg and we are looking for more areas that she might be willing to try. Would love to hear where you are wearing your site and how often you rotate the spots.

Julie , Mom to Adam 22, Patrick 18 and Nikki Tyler 12
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Recommendations Need To Be In By 10/31/2010

When we first entered into the world of diabetes I remember feeling like I was alone and know one really understood what we as a family were going through. We felt like we were in an insulated world where we couldn't leave our daughter because we were afraid to leave her and people were afraid to watch her, to missing my sons baseball games because i was treating a low blood sugar. If you have ever felt this way or know a family that just needs a hug be sure to recommend them for the 2011 "Caring and Sharing Weekend.

The beautiful part about this weekend is that is is totally free to the 19 families chosen and it is for the entire family. Think of it 1 weekend of carefree fun with your family and others. (transportation not included). The 2011 forms are on line for the "Caring & Sharing" Weekend and must be postmarked by 10/31/2010.

Julie, Mom to Adam 22, Patrick 18, Nikki Tyler 12

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No Plan At All!

I just love when there’s no plan and everything comes together. This past weekend Patrick was home from school. It was wonderful to spend the day with him, Nikki and his friend Sean. That night Patrick’s friend Erica came over and they all stayed up watching movies and fell asleep on the living room floor.
Sunday mornings we do breakfast I text ed Adam to make sure he was awake and could meet us, woke the gang on the floor up. Mark was not golfing so he was able to join us and my mother in law Lorraine was also coming. Adam’s friend Matt called to see if he could come too!
We arrived at Denny’s around 8:30 a.m. a party of 9 and it was so wonderful to have everyone together, our children and their friends who are like ours as well. Around the table 4 children tested their blood sugar (Erica also has diabetes) . It was the norm and between the jokes, laughter and love I have to say it was a perfect morning!
It’s moments like this that are just the best! Oh and totally unplanned!

Julie, Mom to Adam 22, Patrick 18, Nikki Tyler 12 all have Type 1 diabetes

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Diabetes Mom Approved

This past summer we had a great experience with The Great Escape in Lake George New York. They were friendly and so accommodating to the needs of our daughter and her diabetes. Having this park recognize the needs of our daughter made her summer one of the best! Since we had season passes we loved going here because we knew that Nikki would be able to really enjoy the park and when diabetes issues came knocking on our door this park stepped up to the plate to help and ensure that Nikki was taken care of and had a good time.

I posted recently on my facebook how "Diabetes Friendly" this park was and also mentioned a place that was not so "Diabetes Friendly". There were so many responses from people also telling about places and restaurants that they have found very helpful to them that it got me thinking. Wouldn't it be great to have a place where we can share this information, other mom's and caregivers sharing information on where the place to be is. After all if there are places out there that give great service, have carbs on menus and other things wouldn't you want to know about it?

So we have created a "Diabetes Mom Approved" Fan Page on Facebook. We have formed a committee of mom's that will be coming up with a mission statement and guidelines so that we can share and spread the word about places that are "Diabetes Friendly".

Be sure to check it out and list what you have found we will be reviewing all posts as we develop this page to bring you the places that are "Diabetes Friendly".

Join us at "Diabetes Mom Approved"

Julie, Mom to Adam 22, Patrick 18 and Nikki Tyler 12 All have Type 1 Diabetes

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Love A Local Business Please Vote For Us!

We have entered a contest that could allow us to develop even more products and ways to make living with diabetes fun.

To win we have to be the one with the most votes, and we will have the possibility of winning a $5000.00 grant to use to further develop, create and enhance products. We also will be able to add to the funding we help raise towards sending more families to camp each year.

So if you could take 5 seconds of your time press the icon to vote . We thank you from the bottom of our heart!

Thank you for giving us the opportunity to serve you.

Julie Mom to Adam 22, Patrick 18 & Nikki Tyler

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Why Free Facebook Friday!

This is just one of the many "Free Facebook Friday" winners that we have had since starting our Free Facebook Friday a couple of weeks ago. I think this picture pretty much says why we are continuing with our Free Facebook Friday's. They are fun and we are making so many friends that can truly use these free products. That's why for the time being we will continue to do a Free Facebook Friday. We hope to get other companies to join us, so if you know a company that might like to participate tell them to contact us because we would love to get a good amount of products to hand out every Friday.

There's nothing like spreading our friendships by helping out where we can. So be sure to share Free Facebook Friday with your walls and let others in the community know that they too can win on Friday's!

It's easy to win on our Free Facebook Friday simply go to facebook and join our fan page

Then watch the video on Friday and write "I Want it under the video"

Julie, mom to Adam 21, Patrick 18 and Nikki Tyler 12 All have Type 1 Diabetes

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How Long Does It Take You!

Julie Mom to Adam 21, Patrick 18 and Nikki 12

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Helping Teachers Help Our Children With Diabetes

Julie, Mom to Adam 21, Patrick 18, and Nikki 12 all have Type 1 Diabetes

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The Day Has Come

August 22nd I woke up to a down pour of rain that promised to continue throughout the day. It was ok because it just went with my mood. The day had arrived to drop Patrick off at school. I thought I would at least hold it together till it was time to leave him, but we never even made it out of our yard before the tears began to fall. Yet Patrick was comforting and I got to ride the whole way out with just him and I, with Mark and Nikki following in the filled van.

The rain was awful and I kept thinking how we are going to unload all of this stuff in this down pour! Have no fear when we arrived to unload his things about 20 students met us at the door and in 1 trip we were able to bring all of his things up to his room.

We quickly got the bed made and things unloaded, than we made the fateful trip to the store for all of the things we forgot or just didn’t think to bring. We stopped for lunch and than brought him back to his dorm.

We met his room mate Chris who was really nice Chris had been there a week because he does soccer, he proceeded to introduce Patrick to more new friends. The college actually had a schedule pretty full of activities for the entire incoming freshman starting with that night.

We finally said our goodbyes (I think he was finally happy to be left alone). Our drive home was filled with more rain, detours that took us out of our way and Nikki getting sick in the back seat. At first I thought she had ketones but none were present and she felt much better afterwards. We got home about 8:00 pm and later that night I received my first Skype call from Patrick telling us he went to the get together and he really thinks he likes it there.

Got to love technology away from home but still connected!

Julie, Mom to Adam 21, Patrick 18 & Nikki 12 All have Type 1 diabets

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The Camping Experience

Diabetes Camps, Oh the anticipation of going, we had to get there early because she wanted a top bunk, we got there and there were no top bunks so she seemed to accept this as a trooper and proceeded to stake her claim to the bunk of her choice. Of course she chose the one that had the draws in it because a girl has to have a place for her things!

Although Nikki has gone to the Circle of Life Camp for years and has always loved it this year was different, first it was at a new location 3 hours away from where we live. So for me this was a little stressful because I am not use to having her that far away from me, also this was her first year with the big girls (the 13 year olds) and up, and many of the kids that normally went to camp weren’t going to be there. She was also going for a longer period of time.

The new camp is huge with a lot more land and room than before with so many possibilities for many events and programs down the road. Nikki loved that this camp had a built in pool (my girl does not like the sand, dirt or lake). We left her in the care of her New Counselors.

I started writing my bunk notes to her right away, and when we picked her up she declared that she had the most bunk notes ever (well i didn’t plan it that way but i think i ordered more credits than i should have and than had to use them up) so she got bunk notes from everyone and really enjoyed them.

The week in our house was quiet and I truly realized how much I enjoy having her by my side, especially now that our Patrick will be going away to school.

Patrick and I drove out to pick her up and the smile on her face and the friends that she was attached to made me realize that no matter what the cost or the distance having a child attend a diabetes camp is worth the experience and friendships that they will make. These friendships will last a life time. We weren’t even in the door and Nikki got on facebook and her new friends were already friending her. Her other friend was texting her all the way home. So although distance may separate them kindred hearts bring them together and facebook and texting keep them connected. They are already planning a meet up!

The cost of a diabetes camp is considerably more than a week long camp for a child that does not have diabetes, so I always like to mention that although the camps are costly they are worth every penny and there are ways to help ensure that your child has this opportunity. Many organizations such as the elks club, and Rotary Clubs just to mention a few often will donate to help a child go to diabetes camp. Also many of the camps have a process where you can apply for scholarships to the camp. Another option is to do your own fund raiser to help with the cost of camp. I hope that your child has the opportunity to visit one of the many wonderful diabetes camps available.

Till Next Time: Julie mom of Adam 21, Patrick 18 and Nikki 12 All with Type 1

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Texting & Driving

As parents we all now have something in common when our children start driving, for parents with children who have diabetes it is the worry of a low blood sugar but what about all the “texting” that’s going on? Throw in the distraction of texting and we are faced with one more obstacle to over come. I am all for putting the phone away when driving unless needed, but if your kids are like mine they can virtually text without even looking.

I recently did an interview with Dr. Charles Sophy: Dr. Charles Sophy has dedicated his life to the physical and mental well-being of children and families nationwide. As a psychiatrist specializing in Adult, Child & Adolescent Psychiatry and Family Practice, he currently serves as the Medical Director for the Los Angeles County Department of Children and Family Services (DCFS), the nation’s largest Child Welfare System. He was first asked to provide his medical opinion on national television for PBS in a show called “A Place of Our Own”. After a successful first television appearance, he was invited to provide his expertise on Celebrity Rehab with Dr. Drew Pinsky, Sober House with Dr. Drew, Today Show, Larry King Live, The Rachael Ray Show, Fox News Channel, Good Morning America, CNN Anderson Cooper, Inside Edition, CBS Early Show and Fox News Channel. He is best known for his work with Dr. Drew on Celebrity Rehab and is now a regularly featured expert. For more information,

Watch our video :


visit: http://www.lg.com/us/mobile-phones/text-education/about-text-ed.jsp


Feel Free to share our blog with your friends.

Julie, mom of Adam 21, Patrick 18 and Nikki 12 All suffer from Type 1 Diabetes

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Many Changes

Did you ever notice that when things happen they usually happen all at once. We have so many changes happening here that it really is amazing. First in front of our house they are redoing the park and tennis courts to a newer and improved regulation size, redoing our road and sidewalks, we literally cannot go out side our front yard due to the ongoing construction. They are working really hard and the park and road should be ready for September.

To get to our home you have to come on to the island it’s called Van Schaick Island and the bridge to get here has been being redone also, so we have to come into the island from the other side. The new bridge is looking really good and should be ready this September.

Then in the mist of all this we had Patrick graduate from High School and in 3 weeks (so soon) we will be packing him up to go to college. Adam has ventured out on his own (for the 2nd time) with a group of friends leaving yet another room empty. Come September it will be just Mark, Nikki and I and a new bridge a new park and a new road.

After a summer so full of noise, activity and fun it will be interesting adjusting to the quiet of the street and the house.

Julie, Mom to Adam 21, Patrick 18 and Nikki 12 All with Type 1 Diabetes

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Dex 4 To The Rescue

I just had to take a moment and blog about a recent "low blood" sugar that we had when we were in Myrtle Beach. Nikki was getting ready to go on a ride, while in line she felt low and tested her blood sugar she was 60. She proceeded to pull out her container of "Dex 4 bits" and started to eat them, all of her friends wanted to try them and guess what they all loved them. Nikki really felt great about sharing this treat with her friends while also bringing up her low blood sugar.

Some times I forget that it's hard to stop having fun to treat a low, she really wanted to go on the ride with everyone else yet we had to treat this low. There have been many times where I have had to pull her out of line or take her out of a game to treat the low, being able to treat her low and continue on with her friends really made a difference.

Remember they are kids first and the more we can do to make their lives normal the happier we all our. Having fast acting sugars that taste good and work quickly are essential in keeping our kids happy and healthy.

Just had to share this, here is the link to Dex 4 "bits". I am sure that everyone has their favorite for treating lows feel free to share!

Julie
Mom to Adam (21), Patrick (18), Nikki (12)

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Adults? Not

Adults Right? Not!

Heres something Important for everyone to know if you have a child reaching the age of 18 and adult hood. Once they turn 18 they are considered and an adult and by law you have to have this young adults permission to get information about their health care and school records.

What this means is that as your son or daughter ventures off to college or the work world you will not be able to help them order medical supplies, talk with their doctors, get prescriptions filled or assist them in a medical emergency unless you have written permission giving you access to do so. You will not be able to get information about their grades and school life unless they allow you that access. You will of course still be responsible for this young adult, have to paid all of their bills and meet all of their needs. You just don’t have the ability to know what is going on behind the scenes unless they sign off. Yes parents you get to pay for college you just don’t get to know if they are actually going to class or passing.

Here’s how to stay in the loop! Have your child sign the forms allowing you access to school records. What if they don’t want to sign? I don’t want to pay, in our house it is as simple as that. Yes you have the right to privacy but when I am paying the bill out of respect you will give me access to know what the grades are.

Health care is another matter entirely you need to have written permission to talk with doctors, I have my son’s give a letter to their doctors offices and I also have a letter on hand so that in case of an emergency I can prove that it’s ok for them to talk with me.

I have been blessed that my sons have freely given us access to school and medical, however I have seen horror stories of young adults that have not signed for parents to access this information and parents not knowing their child has not gone to class for an entire semester yet they were responsible for the bill. I have also seen parents try to assist their young adults with insurance information only to be told that they don’t have the right to that information.


It’s Hipaa at it’s finest, and although I agree with this law, I don’t think it should be in effect till our children our out of school.

The Health Insurance Portability and Accountability Act (HIPAA) of 1996 (P.L.104-191) [HIPAA] was enacted by the U.S. Congress in 1996. It was originally sponsored by Sen. Edward Kennedy (D-Mass.) and Sen. Nancy Kassebaum (R-Kan.). ...
en.wikipedia.org/wiki/HIPAA


Julie, mom to Adam (21), Patrick (18) & Nikki Tyler (12.5) All Have Type 1 Diabetes

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Happy Birthday To My Best Friend Dawn

Happy Birthday To My Best Friend!

This weekend celebrates one of my dearest and best friend’s birthday. Dawn will celebrate her 50th birthday on July 4th. Who would have thought that over 22 years ago after meeting at an aerobic class that we would still be going strong! I even introduced Dawn to her husband at my son’s birthday party and they will celebrate 10 years of marriage this year. We have been together through all of my children's diabetes issues, and Dawn's Breast Cancer and through all of this have built a company and stayed friends, growing stronger as we go. Our birthday’s are exactly 1 month apart (mine was June 4th). (yes I am 1 month older) I can not describe how wonderful a friend Dawn is, she’s the person you know will always be there for you, she’s the one you know you can call at 2:00 a.m.just because. She if fierce in her protection of me and my family and will sacrifice her last dime to help a friend. Dawn is the friend that everyone wishes they had and I am so happy to call mine.

August 1st is friendship day and I thought this would be the perfect time to let our best friends know what they mean to us. I found some wonderful quotes that I think truly fit Dawn when I think of her. As I wish Dawn a very happy birthday I hope all of you also have the opportunity to reach out and send one of these quotes or a hug to your best friends! Happy Birthday Dawn, Thanks for making me a better person and for being there through everything! Love ya, these quotes say it all hugs!

Quotes That Remind Me of My Best Friend Dawn:

A friend is the one who comes in when the whole world has gone out. ~Grace Pulpi

The best kind of friend is the one you could sit on a porch with, never saying a word, and walk away feeling like that was the best conversation you've had. ~Author Unknown

Lots of people want to ride with you in the limo, but what you want is someone who will take the bus with you when the limo breaks down. ~Oprah Winfrey

Friends are relatives you make for yourself. ~Eustache Deschamps

A friend knows the song in my heart and sings it to me when my memory fails. ~Donna Roberts

A true friend is one who thinks you are a good egg even if you are half-cracked. ~Author Unknown


Friends are kisses blown to us by angels. ~Author Unknown

A true friend reaches for your hand and touches your heart. ~Attributed to Heather Pryor

Happy Birthday To My Best Friend Dawn Love Julie

Julie Mom to Adam 21, Patrick 18 and Nikki 12 all have Type 1 Diabetes

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My Facebook Friends

Facebook Friends!

Something that I have been thankful to have found are the numerous friends on Facebook. I have found so many old friends along with making new ones.

What is really nice is that I never thought that I would consider Facebook a support system but I find that is exactly what it is. Whatever the time, place or occasion you can expect to find friends willing to encourage you and support you. There’s always someone available for a chat, always someone willing to give you answers to your questions.

So if you are out there and think that you are alone than come on over to Facebook and become a friend!

Thank you all my Facebook friends both Old and New I love connecting with you all!

Julie , Mom to Adam 21, Patrick 18 & Nikki Tyler 12 All Have Type Type 1

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My Passion To Be Heard

I am often asked to speak at various events relating to diabetes and mainly our experiences as a family of three children with type 1 diabetes.

I will honestly tell you that I don’t have the answers only what we have done to try to help motivate our children, keep them safe and be their advocates. I can honestly tell you that everything we try does not work and we simply move on and try the next thing. Since all of our children are at various ages and stages in life ages 21, 18 and 12 with the youngest being diagnosed at 2 ½ years old, we have I think been running through just about every thing imaginable pertaining to diabetes. I like to share these experiences because we truly are not alone on this adventure.

I recently spoke at an event where a women came up to me afterwards and told me that hearing me speak about harping on one of my sons about his diabetes and what he wasn’t doing that I forgot to look at what he had been doing and when I finally realized what I sounded like to him and corrected my behavior and started to look at the good he was doing I started to see a turn around in him. I think of myself as a pretty positive person and here I was forgetting to concentrate on the positive. Even one small positive thing that someone is doing is so worth praising and can really make a difference. Listening to this mom talk about her own son’s issues and how she felt that all she did was tell him what he wasn’t doing that she forgot about telling him how proud she was about the things he was doing. By the end of the night we were both in tears and knowing that we somehow were able to connect in such a basic way just refueled me and my passion to be heard.

Helping one person to know that they are not alone really does make a difference so if you have an opportunity to be heard don’t be afraid to share your experiences.

Julie mom to Adam (21), Patrick (18) & Nikki Tyler 12 all Type 1 Diabetes

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I Don't Feel Guilty

I Don’t Feel Guilty!

About 6 years ago we were in Disney and my son Adam had an episode from standing in the heat. He was with a group of other children who also happen to have diabetes and by the time I got to him he was dehydrated and basically done for the day. He was in their medical office for the a while and at the hotel with my husband the rest of the night recovering from being dehydrated.

This all occurred because he was standing in lines, not drinking etc. It happened fast and his blood sugar just dropped and it was difficult to keep it up. Disney was actually wonderful and they offered us a pass to get him on the rides without waiting in the lines. He was to sick to use the passes that day but we went back actually a couple days later and had a wonderful day because we were able to use this pass to move us through the lines with out all that standing in the hot sun.

At first I felt guilty for using the pass and moving ahead of the lines (people will look at you like how come you get to go in without waiting) people don’t really understand why it’s not good for us to have them stand in line in the heat like that and how it really can effect someone with diabetes blood sugar we were lucky with the episode with Adam he was able to recover within a day. As I thought about this benefit (if there is ever a benefit) to go in to an amusement park and let them know of our medical necessity one little thing like being able to get through a ride without having to wait in line was the one thing that could actually be a positive for a child with diabetes I say go for it!

Julie Mom to Adam (21), Patrick (18) & Nikki Tyler (12) all have Type 1 Diabetes

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Dear Nick

This is a letter that I just sent to Nick Jonas to invite him to participate in the "Wall of Change". Wouldn't it be great to see Nick's wall of change! Don't know if the letter will reach him or if it will get read but I just had to give it a try!

So Nick if you are out there please join us on the "Wall of Change". We would also like to invite everyone with diabetes to participate it's easy, fun and it will help fund a cure for diabetes!

Dear Nick Jonas,

Thank you for all that you are doing to bring awareness to Type 1 diabetes, and the efforts you are making to help raise funds to find a cure for diabetes. Having you as a face for diabetes has been so rewarding to our children because it lets them know that they truly can do anything. Along with being a face for diabetes you have called attention to the fact that diabetes can affect anyone and that it is time for the cure.

As a mom of three children who suffer from this illness finding a cure for diabetes has become my life time goal. That’s why we have established the “Wall of Change”. The
Wall of Change is simply a wall on the internet that has the many faces of children and adults suffering from diabetes. It’s easy to participate you simply gather your spare change and form the number of years that you have had diabetes than take a picture, you send the picture to us and the change to JDRF. The “Wall of Change” allows us to put a face on diabetes and help fund the cure 1 penny at a time.

We would like to invite you to participate in the “Wall of Change” it’s easy and fun and we know that having you as a face for diabetes would encourage others to help fund the cure 1 penny at a time.

You can view the “Wall of Change”


Hope Everyone has a great weekend and I will be sure to let you know if we hear from Nick! If anyone out there knows him please feel free to pass this on to him!

Julie mom to Adam (21), Patrick (18), Nikki (12) All Type 1 Diabetes

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Because I Like Lists!

I've been getting a lot of calls about people getting ready for camping and I know through the years with our boys camping and now Nikki I find that once again I rely on my lists to make sure that I have everything I need for them. This list I have used for years and you can add or subtract from it what you need, but it has really helped me make sure I have everything for our campers!.

Here I Go Again With My Lists!

Cabin
Bunk sheets and pillowcases
Pillows
Blankets
Laundry bag

Recreation
Swimsuit and swim cap
Swim goggles
Beach towel
Ear plugs
Nose plugs
Beach ball

Personal
Items
Toothpaste, toothbrush and holder
Soap dish and soap
Disposable towelettes
Towels and washcloths
Lip balm
Sunscreen
Special blanket/toy

Diabetes Items

Site changes (lots)
Reservoirs
Injector
Test strips
Spare test kit
Ketone strips
IV Prep
Batteries for Pump
Batteries for test kit
Insulin
Other meds
Frio Insulin Pump Wallet
Splash Pack for Insulin Pump
Spare Insulin Pump Case


Emergency or First Aid Items
First Aid kit
mirror
Police whistle
Insect repellent
Instant cold compress

Camping Equipment
Backpack
Sleeping bag
Flashlight/batteries/bulbs
Canteen with cover and cup
Plastic or enamelware dishes
Knife, fork and spoon set
Compass
Binoculars
Camera
Sunglasses

Clothing
Underwear
Athletic socks
T-shirts
Shorts
Jeans and pants
Sweatshirt
Shower shoes
tennis shoes
Hiking boots
Rain suit or poncho



Hope that this list helps get you ready for camping.

Julie Mom to Adam (21) Patrick (18) Nikki (12) All Type 1 Diabetes

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How Many Balls In The Air Do You Have?

How many balls do you have in the air? Do you ever feel like you have so many things going on that you can’t imagine getting everything done? It’s really kind of funny but the more balls I have in the air I really feel like the more things I do get done!

You know the old saying, if you want something done than ask a busy person! That is so true. This past week has been a crazy, crazy, week, I was tied up all day at a career fair (which was totally awesome) than we had softball games, dance practice for Nikki’s recital, Junior National Honor Society, Chamber meetings and trying to get house, yard ready for upcoming graduation party. In the mist of all of this I have been running around trying to make sure everyone is testing and blousing, (remember we had those not so pretty episodes of not testing and blousing when they should). So I have been trying to stay on top of all 3 children. One child is really doing well, one is starting to see the light and making improvements, and one child is telling me lots of stories, (like “I didn’t eat at all today” therefore I didn’t need to test and bolus) and if I believe that one I am sure there will be another tale for me. With diabetes it’s just being consistent and continually trying to stay on top of what is going on. I don’t have a secret formula of what works and what doesn’t but I do know that if “I” am not watching what is going on it seems like everyone gets lazy.

So in the mist of all our craziness I make list after list of things that I need to check and do and I find that more often than not I am pretty good about getting through my list, and I am great at follow up! So if you are looking to get all those things you want done, than start making “lists”. I have to write down even the smallest things like (remember to text Nikki for blood sugar) because I just won’t remember if I don’t have it written down, (now that is sad).

Have A Great Weekend!

Julie mom to Adam (21), Patrick (18) and Nikki (12)

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Sometime's We "React"

I have to tell you this story because I know that we are not alone in our quest to ensure that our children are protected and that they know how to handle different situations. As parents of children with diabetes I think we are always on the guard to stand up for our children which is a good thing but sometimes we “react”!

Nikki was at a softball game the other day and she forgot to put on her “pump band” which would keep the pump up and out of the way . So she left the pump in her hook “pump pak” which dangles. It was clipped on to her shorts. When she went up to bat the Empire said something to her, my husband witnessed her disconnecting her pump and putting it off to the side than batting.

Of course you are reacting right now exactly the way my husband reacted! How dare he tell her to remove her pump, doesn’t he know that this pump needs to stay on her! So my husband goes storming over to the Empire ready to give him a piece of his mind about asking her to remove the pump. The two had a little discussion and come to find out the Empire did not tell her to remove the pump, he simply stated that she needed to tuck it in so that it was not dangling, and Nikki decided it was easier to remove the pump!

So something’s are not always what they appear to be, this instant just reminds me to make sure we know all the facts before we “React”.

Julie, mom to Adam (21), Patrick (18), Nikki (12) All have type 1 diabetes.

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One of those days!

My day started pretty good, I got out the door on time went to pick up my daughters friend to take to school, I waited in the car while Nikki went in to get her, 20 minutes later they came out, all was good I had my kindle to keep me company.

Drop them off at school, run to post office, go to work, son number 1 comes in to go over some paper work he needed help with, no sooner sit down and son # 2 calls has a rash that won’t stop itching, he is highly allergic to a lot of things and had already been to the doctors once but the meds weren’t working. Can’t get him into a doctor again so we are on way to emergency room when I finally get a hold of doctor for new meds. Go to Pharmacy to get the meds, I could see this was going to take way to long so I leave my son there with payment (nice that he can drive) and head out to my 11:30 meeting. Meeting turned out to be a bust not at all what we were thinking it would be, so I turn around to run out to get a shipment of new products rushing to make sure I can get the shipment and get back to pick up Nikki. The shipment turns out to have the wrong size case and has to go back (what are you going to do things happen) so I go and pick up my daughter from school.

School gets out no Nikki, then I remember she has practice for her awards ceremony no problem I have my kindle to keep me company. She comes out 1 hour later and wants to go to her bowling league which she at this point has already missed more than half of, but it’s the last one and they are giving out awards so I pull into the bowling alley she runs in. Nikki comes back 10 minutes later with 2 awards and a bowling towel and lets me know that I owe her 1.00 because she didn’t bowl but I have to pay if she misses it. She’s happy and I am ready to head home and son number 2’s skin doctor calls and wants to see him, he is on his way back to the office can I meet him there. I drop off Nikki and meet Patrick at doctor’s office, long story short guess what Patrick has? Poison IVY poor kid! So we finally get him taken care of, I stop yes again at the pharmacy to drop off the new prescription and run home because now its 5:30 and Nikki has a softball game. Ask me what I got done today and I think I will scream!

So I calmly turned Nikki over to my husband and told them to have a great game and I will see them in a little while. Finally Peace & Quiet! It was just one of those days!

Julie Mom to Adam (21) Patrick (18) & Nikki 12

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The Trick List!

After a very shocking Dr. Appointment I have decided to let those of you who have children in the 12 and up age group in on some of the most common “Tricks” that our kids are playing with their lives.

1. When you ask them to test “Be sure they are really testing” and not just pulling out the test meter and giving you a number. Or if you are not in the same room as them they may just give you the number you want to hear.
2. If you look at their pump and you don’t see a blood sugar listed (they just bloused) chances are good that they never tested and simply bloused based on the food they were going to eat and how they felt.
3. Don’t buy the excuse I used the test kit up stairs, in my car etc. If you don’t have a kit to verify a number don’t believe that they tested.
4. When you ask them what their blood sugar was at lunch don’t take it for fact that they did even test at lunch.

As our kids get older they also get wiser to what we want to hear and what they don’t want to bother with, they will come up with a lot of ways to hide the fact that they just aren’t testing and blousing they way they should.

We had quite an eye opener when we down loaded one pump and saw that the only time this child had tested was at super (when they were physically with us). For breakfast there was nothing entered in the pump for a breakfast bolus or blood sugar! How can this be since I literally get this child the same thing every morning for breakfast ask them to test and they “always” give me a number, I even remind them by saying did you bolus and the answer is always “Yes”. So how can you have a day on your pump where the only blood sugar and bolus are at super when you are physically sitting in front of me?

This type of Dr. Visit of course was a huge wake up call to what we are being told and what is actually being done. So I rounded up child number 2 and looked at his pump and he had boluses in it but only 1 actual blood sugar throughout the day? What does this mean I asked, well this child has the wisdom to see and feel what the actual blood sugar is therefore no need to test! How on earth can you give yourself insulin and “Not even know what your blood sugar is?”

So based on this enlightenment I have printed out calendars laid them on my desk and every night I am “PHYSICALLY” reading all the information off of the pump to verify the testing and blousing. Weekend activities and privileges will be given based on the outcome of these readings.

Just when you thought you were 2 steps ahead you take 4 steps back. Playing with their lives is not an option so we will be persistent in making sure the “Tricks” are over.

Remember Kid’s will be Kid’s but we have to be smarter!

Julie , Mom to Adam (21) , Patrick (18) and Nikki Tyler (12) All Type 1

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Gross But It Works

Gross But It Works!

Do you watch your child test? If you do, what do they do with the excess blood spurting from their finger? My one son tends to just rub it into his skin, but my other son and my daughter just lick it off!

I know it sounds gross and I really don’t know if there is a problem doing this, I use to put a wipe in the case for them to just open and clean it with, apparently that is to much work. I then tried just a kleenex you know you can just easily grab it and wipe the excess blood off on that. That worked till the time it needed to be replaced.

Apparently just licking the excess drop of blood off is the easiest and fastest way. My daughter explained to me that she does it because that way she can make sure she doesn’t get the blood on anything else. (she has gotten blood on her clothes before) and this way she doesn’t have to worry about the blood going anywhere.

It’s gross right? I thought so but apparently my kids aren’t the only ones that do this. I was at camp this past weekend and observed several children doing this.

So my next project is going to be to come up with a swatch that attaches to the test kit that has wipes on it so that as you use a wipe you can remove and use the next one. This should last till they use the last sheet, than they will no doubt revert to the lick it off method.

Forever trying to find the perfect solution to a not so perfect disease.

Julie Mom to Adam (21) Patrick (18) & Nikki Tyler (12)

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The Final Straw

How many times should you have to request a young adult clean up their room? I am not talking about just putting away clothes but picking up the computer they took apart because they could make it run better. Or emptying out the huge green garbage bag that they filled when they were cleaning out a car (yes a car)!

Both my husband and I are pretty easy going and would be perfectly happy if the room did not look like the city dump. When opening his door you have to step over clothes and sometimes I think he has more glasses in his room than in my cupboard. He has about 6 blankets thrown all over the place, bags of dirty clothes (what’s with the bags). Than he has clean clothes (he does do his own laundry) folded neatly sitting on dressers, floors and desks. There are cd’s, video’s and change everywhere (I do pick up the change and figure finders keepers).

The room never use to be this bad, but for the past month the junk yard has grown, we have asked nicely, with no reaction today was the final straw! I gathered everything that was on the floor and dragged it on to my nice “clean back porch” (he wasn’t home). I called him and said if you want any of the stuff out on the porch you better come home and clean it up other wise tomorrow I move it to the garbage can!

He pulled up about an hour ago and is cleaning! Good thing I love him!

Julie Mom to Adam (21) Patrick (18) & Nikki (12) All Type 1

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To Go, Or Not To Go!

I remember a time when my daughter was too little to go to a diabetes camp. I waited for years till the time she would finally be able to attend. When she finally hit the age to go several things happened. First she didn’t want to go! Second I was afraid to let her go overnight after all she needed me! (even if the camp has doctors and nurses I somehow thought she wouldn’t survive without my presence ).

So the first year which I remember clearly because it was my husbands & my wedding anniversary and instead of shipping her off and going away we stayed local and I volunteered at the camp (you know just in case she needed me). We settled on a local 3 day camp to see how she did. I volunteered in the kitchen (those who know me, will recognized the dedication to my daughter because I hate to cook or even be in a kitchen).

The camping experience for her was so wonderful I couldn’t believe how easily she fit in and how good she felt about being around others just like her. Since I was working in the kitchen and they did a lot of things in the big room there I got to see first hand the interaction between little ones and older experienced kids. How they all encouraged each other and feed off of the smallest accomplishments. These kids became excited about simply testing an arm rather than a finger! Nikki and Patrick's First overnight camp is the “Circle Of Life Camp”. I mention this camp because I know first hand the quality of care and entertainment that my daughter and my son have received. It's funny that something like going to a diabetes camp can really shape your child and build them relationships that can last a lifetime. My son attended this camp (thankfully not on on the same days as Nikki , you know he was a teenager then and didn’t want to mix with the little campers (I guess they like their own space). My Patrick has made so many friends through this camp that even as he prepares to go away to college he still stays in contact with several of them. He has actually stayed in contact with so many of these kids that some days he has more friends with diabetes around him than not! The other cool thing is that now that the kids are getting older they are volunteering at these camps and giving back to the community that has helped them so much.

I guess what I am trying to say is that if you have the opportunity to let your child attend a camp and there are some great ones, such as the Sugar Free Gang, Circle Of Life, and The Barton Center another truly inspiring camp that’s worth letting your child attend. The Barton Center gave Nikki a group of friends to bond with and build a relationship with. I know that some of the camps are quite costly but be aware you can do fund raisers to send your child to camp and you can also contact your local groups such as Rotary & Elks Clubs (some of these local clubs are happy to help a child go to camp) and many camps also have a scholarship fund they can draw to.

It is worth every penny to have your child involved in a diabetes camp, they learn, they thrive and they grow! Oh and Nikki told me right after I finished volunteering at the Circle of Life Camp that it was ok if I didn’t volunteer again because she wanted to be on her own like the big girls! (whew, no more cooking for me)!

Camp Information

The Circle Of Life Camp

The Barton Center

DLife List of Diabetes Camps

Julie
Mom of Nikki Tyler (12), Patrick (18) & Adam (21) All Type 1

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When They Are Ready

When Nikki was little she took dance for a while. She didn’t care for it until 3 years ago when she tried ballroom dancing (yes they actually teach ballroom dancing). She has loved it, and eagerly goes to dance class every Wednesday. We had tried, jazz, tap, and Irish Step (that’s a whole different story). All of the other classes fizzled out over months, but the ballroom dancing stuck.

When Nikki was 6 she started softball, my husband was the coach, because after all he always coached the boys and wanted to do the same for her. She was absolutely horrible! She was whiney, didn’t want to play, and didn’t like anything about the game. She was so bad and gave him such a hard time I eventually had to pull her and let him coach the team without her! How dedicated is he to be coaching a team for the season even though your own daughter won’t play. Well this season Nikki has asked to play softball again! Believe me I wanted to run in the other direction and tell her absolutely not! Of course, she wore me down and we signed her up. We have been at practice the last couple of weeks and to my surprise she is actually enjoying it. What a difference a couple years can make.

This year Nikki has a woman coach (no dad this time, I think he is silently thanking us for not asking him). The major message here is that this time she “Asked” to play, just like she asked to do ballroom dancing. Although we had tried these things in the past and they didn’t work, this time they are working I think because now she is ready! So if you feel like your child should be doing something like playing softball and they don’t want to or they give you a hard time about participating than it’s sometimes better to wait till they are ready.

Julie
Mom to Nikki Tyler (12), Patrick (18) & Adam (21) All Type 1

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Things That Excite Me

You know you are a mom of a child with diabetes when little things like a good blood sugar first thing in the morning really excites’ you. There’s just something about waking up to a 101 bg that seems to set the pace for the rest of the day.

Simple things in our life with diabetes now have the ability to excite me, for example, don’t you just love it when you ask your darling to test and they say that was my last test strip? Don’t you feel great when you (super prepared mom) can pull out a box of test strips out no matter where you are? Do you get a rush when darling number 2 (son) says he forgot his test kit at home? You anticipating kids being kids, pull your trusted test kit from your purse, even though you don’t have diabetes? With three children with diabetes, someone is always forgetting something, but having three with diabetes there is usually someone who has what we need on them if that fails (usually mom has the back up for the back up). Recently my daughters poker broke and in a panic she automatically started complaining that she was not going to be able to test because there was no way she was just going to jab herself with the needle (can’t say I blame her there) , but out of know where I remembered that when we were at camp last year they gave out these disposal needles and being me I happen to throw a couple in my organizer bag that I keep in the car and sure enough they worked great! It was a quick poke Nikki was happy and I was happy I know it’s pathetic but it excites me when we are able to make it work!.



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